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You First: The Disability Rights Florida Podcast
47 minutes | Jun 17, 2021
Episode 27: 2021 Florida Legislative Wrap-Up
In this episode of You First, we talk to Disability Rights Florida's Tony DePalma and Olivia Babis to discuss the 2021 Florida Legislative Session. Olivia and Tony review a number of important bills that were presented to the legislature, challenges we faced related to the pandemic, and what did and did not pass this session. NOTE: at the time of recording this episode, Governor Ron DeSantis had not signed or vetoed some of the items discussed. Please check our blog at disabilityrightsflorida.org/blog near the end of June or early July for a full and final breakdown of the legislation discussed here today.
31 minutes | May 13, 2021
Episode 26: COVID-19, the ICU, and Mental Health
In this episode of You First, we look at COVID-19 through the lens of mental health. Post-Intensive Care Syndrome (PICS) was identified years before the pandemic, along with great strategies to reduce the chances that someone in intensive care would develop complications related to it. But COVID-19 has changed that, as ICUs became overcrowded and staff overtaxed. Our guest is Dr. Megan Hosey from Johns Hopkins School of Medicine. Megan explains what PICS is, how the pandemic has affected its prevalence, and what new strategies are being developed to deal with it. Resources: Post-Intensive Care Syndrome (PICS) Disability Rights Florida COVID-19 Resources POPPI Study Five Wishes The Conversation Project After the ICU (THRIVE)
46 minutes | Apr 14, 2021
Episode 25: Eco-Abelism
In this episode of You First, let's talk about saving the planet! We can fight climate change by eliminating all single-use plastics and walking to get where you need to go – that will save us all! But will it? Or does thinking like that make you an eco-ableist by not considering the needs of people with disabilities? Our first guest is Elizabeth Wright, a writer, activist, keynote and TEDx speaker, and an Australian Paralympic Medalist. She is also the founder and editor of Conscious Being, a publication for disabled women by disabled women, and the editor of Disability Review Magazine. Liz gives us a global perspective on disability and climate change, and explains why people with disabilities need a seat at the table to help us think more creatively when planning how to combat it. Our second guest is writer and activist Syren Nagakyrie. They are the founder and director of Disabled Hikers, which advocates for accessibility and inclusion in the outdoors. Syren explains why the outdoors are not always as accessible as you might think and how they are working to change that for people with disabilities. Links from the episode: Climate Change, Disability, and Eco-Ableism: why we need to be inclusive to save the planet Elizabeth Wright's website Conscious Being Sustained Ability Disabled Hikers Disaster and Emergency Planning
27 minutes | Mar 15, 2021
Episode 24: SDM4FL: Supported Decision-Making in 2021
In the fifth episode of the You First podcast, we heard from Michael Lincoln-McCreight about something new in Florida called Supported Decision-Making (SDM). Much has changed with SDM and Mike in the four years since then, and he's back to give us some updates. We also talk to Viviana Bonilla López and Tyler Burns. Viviana is an attorney at Disability Rights Florida who coordinates the SDM project and co-chairs the SDM4FL Coalition with Mike. And Tyler is a client of Viviana who is signing his SDM agreement within days of this recording. Relevant Links: SDM4FL Coalition Website Disability Rights Florida Supported Decision-Making Disability Topic
65 minutes | Feb 24, 2021
Episode 23: Disability Media Representation
Our guests on this episode of You First are Beth Haller and Jeff Preston, both of whom are university professors, authors, and experts on disability in the media. They discuss what's been done right and wrong with the portrayal of people with disabilities in film and TV, the impact of streaming platforms on the movement, and why Sia's new movie, "Music," is a disaster. Referenced in the episode: Routledge Companion to Disability and Media Representing Disability in an Ableist World: Essays on Mass Media The Fantasy of Disability: Images of Loss in Popular Culture Disability and Social Media: Global Perspectives Salon: Sia's directorial debut "Music" is a baffling and patronizing cringefest of ableist minstrelsy LISTEN: Film by CommunicationFIRST NeuroTribes: The Legacy of Autism and the Future of Neurodiversity News: We are now on Feedspot's Top 15 Disability Podcasts to Follow in 2021!
25 minutes | Jan 22, 2021
Episode 22: Impact of Weight Stigma on Mental Health
I have experienced weight stigma throughout my life, but had never heard the term or understood exactly how it affected me. After speaking to Shira Collings, I know much more about weight stigma: what it is, where it comes from, and how it can affect mental health. Listen to learn more, and register for our upcoming free webinar on weight stigma. Resources: Food Psych podcast Body Respect book The F*ck-It Diet book/podcast Also, Feedspot added You First to their list of Top 10 Social Security Disability Podcasts! Check out their list for other great podcasts.
23 minutes | Dec 16, 2020
Episode 21: Clumsy Girl Travels
In this fun episode of You First, we talk to Marika Devin, owner of the Clumsy Girl Travels blog. Marika discusses her experiences traveling with a hidden disability, offers practical travel advice to others, and tells us about the time she ate a lamb's head in Iceland.
32 minutes | Nov 19, 2020
Episode 20: COVID-19 Effects on Assistive Technology in Education
The COVID-19 pandemic has deeply impacted assistive technology (AT) access and training, especially for students with disabilities. In this episode of You First, we talk to Ana Nevares of FAAST and Gerry Altamirano of the University of Florida to learn more about the benefits of AT for students with disabilities, how COVID-19 has impacted AT, and what students and parents can do to overcome it.
49 minutes | Oct 22, 2020
Episode 19: Barriers to Employment
October is National Disability Employment Awareness Month (NDEAM), and to recognize that, this episode of You First is all about barriers to employment. Disability Rights Florida advocates Wendy Vance, Victor Panoff, Howard Bell, and Allison Klein explore numerous barriers to employment, beginning with school-age issues all the way to challenges in the workplace, and how they can each be overcome.
20 minutes | Jul 22, 2020
Episode 18: 30th Anniversary of the ADA
In this special episode of You First, we recognize the 30th anniversary of the Americans with Disabilities Act. Disability Rights Florida staff members Barb Page, Juli Pack, Curtis Filaroski, Ann Robinson, Andrea Jenkins, and Olivia Babis discuss the impact the ADA has had on them, how things might be different without the ADA, and what still needs to be accomplished even 30 years later.
24 minutes | Jul 10, 2019
Episode 17 (Part 2): 2019 Legislative Wrap-Up
In the second part of this episode of You First, we conclude our conversation with Disability Rights Florida's Olivia Babis and Tony DePalma as they discuss the 2019 Florida Legislative Session. Olivia and Tony explore several key bills that were presented to the legislature, the outcome of those bills, and their impact on Floridians with disabilities. For more information about the 2019 Legislative Session, visit www.disabilityrightsflorida.org/legislation.
27 minutes | Jul 8, 2019
Episode 17 (Part 1): 2019 Legislative Wrap-Up
In this episode of You First, we talk to Disability Rights Florida's Olivia Babis and Tony DePalma to discuss the 2019 Florida Legislative Session. Olivia and Tony explore several key bills that were presented to the legislature, the outcome of those bills, and their impact on Floridians with disabilities. For more information about the 2019 Legislative Session, visit www.disabilityrightsflorida.org/legislation.
19 minutes | Jun 7, 2018
Episode 16: Navigating Facility Transition
In this episode of You First, our panel discusses the ins and outs of transitioning from one facility to another. First, we hear from Deborah Linton, Chief Executive Officer of The Arc of Florida, who provides an overview of the process and gives us some helpful resources. Next, Bonnie Carr, who, with her daughter Sara, went through the process of transitioning from one facility to another, tells us her story. Last, Kathy Clinton, who, with her son Tristan, also experienced the process of transitioning to a new facility, shares her story with us. Provider Search websites referenced in the podcast: Waiver Providers: https://flddresources.qlarant.com/ProviderSearch.aspx ICF/DD Providers: http://www.floridahealthfinder.gov/facilitylocator/ListFacilities.aspx
18 minutes | Feb 28, 2018
Episode 15: Extended School Year
In this episode of You First, we talk to Disability Rights Florida staff members Nately Alvarez and Lauren Eversole. Nately and Lauren explain what Extended School Year (ESY) is, who is eligible, and strategies to help parents of children in Special Education acquire appropriate ESY services.
25 minutes | Nov 21, 2017
Episode 14: Accessibility in Florida Prisons
In this episode of You First, we talk to David Boyer, Director of Investigations at Disability Rights Florida, and Molly Paris, Assistant Director at Florida Lawyers Assistance. David and Molly discuss how prisoners with disabilities were not receiving the same access to programs and services that other prisoners were receiving, and what Disability Rights Florida did to remedy those oversights.
24 minutes | Oct 16, 2017
Episode 13: Service Animals
In this episode of You First, we talk to Barb Page and Lisa Kinser, two Senior Advocates at Disability Rights Florida that provide assistance for clients with service animal issues. Lisa and Barb discuss the different types of assistance a service animal can provide, what the laws are regarding housing and places of business, and taking your service animal on airlines and other forms of public transportation.
32 minutes | Jul 21, 2017
Episode 12: Special Education
In this episode of You First, we talk to Selina O'Shannon and Nately Alvarez, two Advocates at Disability Rights Florida who specialize in Special Education cases. Selina and Nately provide a wonderful overview of special education in Florida, explain the differences between IEP Plans and 504 Plans, and offer a wide array of tips and tricks to help make parents' lives a little bit easier.
20 minutes | Jun 22, 2017
Episode 11: Special Needs Shelters - Your Life Raft in an Emergency
In this episode of You First, we talk to Judy Silverstein, Regional Special Needs Consultant at the Florida Department of Health, and Carol Stachurski, Program Operations Manager at Disability Rights Florida. Judy and Carol explain how Floridians with disabilities can best prepare for emergencies, including signing up with the Special Needs Registry, how Special Needs Shelters are different from conventional shelters, and more.
18 minutes | May 19, 2017
Episode 10: Peer Support
In this episode of You First, we talk to Crystal Lilly, Director of Education and Training at Federation of Families of Central Florida, and Cameron Wood, Executive Director of the Peer Support Coalition of Florida. Crystal and Cameron discuss peer support programs, a natural extension of the recovery-oriented systems of care we discussed in Episode 7: The Right to Recovery. They also discuss the roles of Certified Recovery Peer Specialists, how you could become one, and be a part of the peer support movement.
22 minutes | Apr 13, 2017
Episode 9: What is the Client Assistance Program?
In this episode of You First, we talk to Janniell Vazquez and Howard Bell of Disability Rights Florida. Janniell and Howard tell us about the Client Assistance Program (CAP), including information about who is eligible and what types of services can be provided. After listening, if you believe you could benefit from CAP, please contact us at 1-800-342-0823 or www.disabilityrightsflorida.org/intake.
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