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The Upside Down Family Podcast

41 Episodes

28 minutes | Mar 25, 2021
Episode 040 - Adopting a Baby with Down syndrome
Ellie Sanazaro is a mom to three, one of which has an extra chromosome, and is the author of the new book Image Bearer!  In today's episode Ellie shares about the adoption process when adopting a child with Down syndrome.  Through all of the pitfalls and uncertainties, Ellie knew God would bring them through, and he truly blessed their Upside Down family with their son, Finn!
8 minutes | Mar 23, 2021
Episode 039 - Celebrating World Down Syndrome Day
Season one of The Upside Down Family Podcast is coming to a close on Thursday!  In today's episode we share how we celebrated World Down syndrome Day this year, and share one big take away from season one.  Thank you for being part of the Upside Down Family!
33 minutes | Mar 18, 2021
Episode 038 - Art of the Heart: Building Bonds and Making Music
With his life already feeling chaotic, Jesse learned that his new baby girl not only has Down syndrome, but would also need a heart surgery.  It was a tailspin, and he found himself struggling to connect with his daughter.  But as he cared for her, he determined he would fight for her. This resolve led to Jesse writing and recording an album about this  journey, and how he and his daughter built bridges.  Listen in to my conversation with Jesse Norell! Visit https://jessenorell.bandcamp.com
19 minutes | Mar 16, 2021
Episode 037 - The Value of Your Story
Phil Martin (Kyle's Dad) speaks and writes about life and business principles, and to celebrate his new book "Take the Stage: 64 Essential Leadership Lessons Learned from Theatre" I interview him on some (not all 64) of those principles.  He dives into the importance of your story, going beyond communicating to truly connecting, to inviting the audience into the story, and finally defining success. Dad has a rich and storied history, and I'm so glad I get to share him with you.  Enjoy this conversation with Phil Martin!
19 minutes | Mar 11, 2021
Episode 036 - Passing a Non Discrimination Law, and How to Pray about a Diagnosis
People with disabilities were often denied access to transplant lists... Until superheroes like Rachel Anderson came along!  Calebs law is helping people with differing abilities have equal rights to organ transplant lists, and its amazing work.  Rachel shares this and more in todays episode!
19 minutes | Mar 9, 2021
Grandma's Advice for Heart Surgery
Not many people are invited into the inner circle when a baby has heart surgery.  Parents anxiously wait for updates and then news that their little one was moved to a room for recovery.  But Grandma Carol was there with us, mom and dad, as we waited for and prayed over Evie as she underwent open heart surgery.  Her advice is poignant and her story is beautiful, listen in and enjoy!
27 minutes | Mar 4, 2021
Episode 034 - Tips and Tricks from an Occupational Therapist
Jaclyn is a friend that we reconnected with after almost 12 years of not seeing each other!  She has a beautiful family, a thriving blog, and a passion for working in occupational therapy, especially with individuals with differing abilities.  We hear so often about limitations that come with a Down syndrome diagnosis, but Jaclyn some very tangible tips, and the reason behind encouraging certain exercises and practices.  Enjoy this conversation with Jaclyn Bender!
15 minutes | Mar 2, 2021
Episode 033 - The Mindset and Story Behind Embracing Our Adventure
Where did the name "Upside Down Family" come from?  What does it mean?  Today Erin shares some background info and stories about The Upside Down Family, and the mindset we had as we began to embrace our adventure.  Plus Erin talks about some of the things families need to be aware of as they share their story and their life on the public forum of social media.  Thank you for being part of the Upside Down Family!
20 minutes | Feb 25, 2021
Episode 032 - A Basket of Hope for a new Diagnosis of Down Syndrome
When parents receive a diagnosis of Down syndrome for their unborn child, they deserve to know that child will be celebrated and cherished.  It is Sarah Lowry's mission to bring baskets of hope to soon-to-be mothers that are processing this new and unknown world of a child with Down syndrome.  Listen in as Sarah shares how she and her family have embraced their adventure!
25 minutes | Feb 23, 2021
Episode 031 - Loving Their Niece at a Distance with Jessica and Josh
There are 800 miles between Jessica and Josh, and their little niece Genevieve.  Though they couldn't be present for her birth date, diagnosis, or heart surgery, strong family bonds kept Jessica and Josh close to the entire family.  Now today, still mostly over Zoom, Jess and Josh celebrate Evie's birth, recovery from surgery, and promising future.  Listen in as they share how they became part of the Upside Down Family!
24 minutes | Feb 18, 2021
Episode 030 - How to Live a Fulfilled life with Multiple Chrildren with Different Special Needs
Laney and Jon's first child was diagnosed with Autism, and their sixth was diagnosed with Down syndrome.  Each with their own set of challenges, and together bringing them a joy that's nearly indescribable.  Listen in as Laney shares some of her secrets within to happiness and fulfillment within their family's story!
9 minutes | Feb 16, 2021
Episode 029: Quick Facts about Congenital Heart Defects CHD
I never thought we'd need to know what CHD stands for. Turns out it stands for Congenital Heart Defect... or a heart defect that is present at birth! Genevieve, our daughter with Down syndrome had a CHD, and did have open heart surgery to correct it. As we went through this process, we found out there was a lot we didn't know about CHDs, and we want to share some of those facts with you! Listen in for a quick fact spotlight on CHD for American Heart Month. Thank you for being part of The Upside Down Family!
21 minutes | Feb 11, 2021
Episode 028 - Being a friend to a Person with a Differing Ability
Everyone needs a friend like Mara.  And Mara will confirm that everyone needs a friend like Miranda.  These two are not an outlier example of friendship that bloomed in spit of a differing ability... but a shining example of what true friendship is between any two people.  Enjoy this very special conversation with Mara and Miranda!
17 minutes | Feb 9, 2021
Episode 027 - Working with individuals with Differing Abilities and the benefits of IEP
In today's candid conversation we talk with Carl and Jess Gumness.   Carl is Erin's brother, and He, Jess, and their two sons live in our same tiny town.  Jess offers a unique perspective from having worked with individuals with differing abilities as she pursues her career in the field, and opens up about how she utilized an Individualized Education Program as she completes her schooling.  Enjoy, and thanks for being part of the Upside Down Family!
22 minutes | Feb 4, 2021
Episode 026 - Winning the Down syndrome Lottery with Ashley Engele
When Ashley received her daughter's Down syndrome diagnosis, she also learned that for her specific situation, it was hereditary. So how did her and her husband go from one little lady with Down syndrome, to a family with three beautiful daughters, two of which have Down syndrome? Listen in as Ashley dives into their process of becoming a family, and truly exemplifies what it means to embrace their adventure.
4 minutes | Feb 2, 2021
Welcome Back! Season one Part two Intro
It's not season two yet!  But we're excited to be back for the second part of our very first season.  We share a little about our Christmas time and family time, and tease  about  what's coming down  the pipeline this season... including a great resource that  we wished we had when we started our adventure!  Thank you for being part of the Upside Down  Family!
23 minutes | Dec 17, 2020
Episode 024 - Know The Glow - How a Cancer Diagnosis Gave Perspective to a Down Syndrome Diagnosis
Andrea learned that the baby in her womb had Down syndrome, and likely other health complications.  Her and Husband Joe refused to terminate the pregnancy, and gave birth to their second son, Ryder.  He thrived and exceeded expectations, but his pictures always had a strange glow in his eye.  Listen as Andrea shares Ryder's story of overcoming childhood cancer, and thriving as a growing boy with Down syndrome.
15 minutes | Dec 15, 2020
Episode 023 - An Entire Month of Christmas
An entire month of celebrating Christmas! We have traditional celebrations, fun new celebrations, gift celebrations, and giving celebrations. The stories and memories will last a lifetime. Share with us on Instagram some of the ways you celebrate the season, or your favorite tradition. We wish you health and happiness, and a month of merry Christmas!
32 minutes | Dec 10, 2020
Episode 022 - Unexpected Challenges with Mosaic Down syndrome and a Mission to Educate
Krista Lynn had a feeling that her baby would be unique, and specifically wondered if he had Down syndrome.  She was right, but as she says in the episode, her story of receiving the diagnosis was worse than the diagnosis itself. Now she's on a mission to improve how parents receive a birth diagnosis of Down syndrome.  She also shares that her son has Mosaic Down syndrome, which is a more rare type of DS, and has led to some unexpected challenges as they've embraced their adventure.
26 minutes | Dec 8, 2020
Episode 021 - Our Niece has Down syndrome - Aunt Kara and Uncle Josh Share their Candid Thoughts
Kara and Josh were the first of the extended family to arrive at the hospital when we were in the postpartum rooms after Genevieve's birth.  We knew about her diagnosis, and were very curious how our family would respond.  It was great to hear about their thoughts as we all started this adventure.  Josh's insights were even better because this was all still new to him, not even being married into the family yet!  thanks for tuning in and enjoy!
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