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The Parkinson's Podcast
57 minutes | 20 days ago
YOPD Council: Dementia and Young Onset Parkinson's
Did you know that dementia in people diagnosed with young onset Parkinson's disease (YOPD) looks different than dementia in those diagnosed with later-onset Parkinson’s? In this webinar, Dr. Rodolfo Savica, MD, PhD, and YOPD Council Leader Tom Palizzi discussed dementia: what it is, how it develops, and its relationship to Parkinson's, as well as some distinct differences between YOPD and later-onset Parkinson's.
57 minutes | a month ago
YOPD Women's Council: Period, Menopause, HRT, Hormones, and Parkinson's
Receiving a Parkinson’s diagnosis when you’re young is overwhelming enough. Being a woman with a Parkinson's diagnosis adds an additional layer of complexities and challenges. In this panel discussion, our YOPD Women's Council and special guest Dr. Karen Jaffe, MD, talked about the added challenges women living with Parkinson’s face as it relates to menstruation, menopause, and hormones.
60 minutes | a month ago
HEALTH DISPARITIES AND PARKINSON’S: UNDERSTANDING THE ROLE OF TRUST
Racial differences in Parkinson’s treatment and mortality exist. When it comes to addressing these disparities, the concept of trust comes up in nearly every conversation. But what do we really mean when we talk about trust? In this conversation, Dr. Altaf Saadi and Dr. Consuelo H. Wilkins will examine the concept of trust, what we mean when we talk about trust, and how trust is necessary to address health disparities.
52 minutes | 2 months ago
Living Well with Chronic Pain and Illness
In the book How to Live Well with Chronic Pain and Illness: A Mindful Guide, author Toni Bernhard addresses a broad range of topics and how the practices of mindfulness, equanimity, and self-compassion can make life as good and joyful as possible in the face of a diagnosis like Parkinson’s. During this webinar, Toni discussed what she’s learned about living with chronic pain and illness and how to live well no matter what obstacles you are facing.
60 minutes | 2 months ago
Living Well Series: Telemedicine and Parkinson's
Imagine if you had access to your doctor or movement disorder specialist via a computer was just a few clicks away. Or you could have an appointment via the phone in the comfort of your own living room. Telemedicine makes that possible.
56 minutes | 2 months ago
YOPD Council: Death, Dying, and Parkinson's
Our YOPD Council leaders discussed: Parkinson's and its effect on their perspectives of death Strategies for managing feelings of loss How to effectively prepare for end-of-life and live well in the moment NOW How to have conversations with your loved ones about death How to re-channel your energies on things that bring you hope
62 minutes | 2 months ago
YOPD Women's Council: Diagnosis and Symptoms
Our YOPD Women’s Council and special guest Kathleen Reardon discussed: The road to their Parkinson’s diagnosis The differences between men and women when it comes to symptoms and medications The importance of advocating for yourself and finding the right doctor Finding joy through new creative pursuits
70 minutes | 2 months ago
YOPD Women's Council: Medications and Treatments
In this panel discussion, our YOPD Women's Council and special guests Dr. Jill Farmer and Vicki Dillon discuss everyone's unique journey with medications; the many types, classes, and possible side effects of Parkinson's medications; and the importance of trying a variety of medication combinations until you find the best fit for you.
62 minutes | 3 months ago
Health Disparities and Parkinson's
In this webinar, a panel of Parkinson’s organization leaders serving people across the US discussed common issues that exist within urban communities and rural communities alike, common assumptions and misunderstandings about rural and urban communities, what policy makers and other decision makers miss most often when it comes to addressing the unique needs of our communities, and what leaders and Parkinson’s advocates can do TODAY to help address health disparities like these that may exist in their own communities
60 minutes | 3 months ago
Speech, Voice, and Parkinson's with John Dean
Speech and voice impairments are common among people living with Parkinson’s. As many as 90% of people with Parkinson’s experience difficulties such as “hypophonia” (soft speech) or a more monotone, raspy, or breathy voice. Speech can become less intelligible and can make communication difficult, especially if paired with facial masking (a decrease in facial expression). It will come as no surprise then that speech and voice impairments can impact quality of life. Speech and Language Pathologist John Dean recently sat down with us to discuss the various speech challenges related to Parkinson’s and actions you can take every day to train your voice, improve your speech, and communicate more fluidly and clearly.
62 minutes | 3 months ago
YOPD Council: Careers and Changing Paths
Receiving a Parkinson’s diagnosis when you’re young is overwhelming enough as it is. Add the need to exercise daily, attend a variety of medical appointments, and focus on your mental health to an already busy work schedule and it can feel like too much. Plus, if you don’t love your current career path, or you do but the demands exceed your energy and ON time, the possibility of changing careers or shifting roles at your age might feel like a pipe dream. But it’s not.
31 minutes | 5 months ago
Every Victory Counts - Part 18 - Parkinson's Planning for the Future
In this final chapter, we share ways to plan for the financial impact of Parkinson's, as well as advice about long-term care planning for people with Parkinson's.
23 minutes | 5 months ago
Every Victory Counts - Part 17 - Parkinson's and the Family
Learn how to navigate changing relationships within the family after a Parkinson's diagnosis and as it progresses.
82 minutes | 5 months ago
Every Victory Counts - Part 16 - Parkinson's Care Partners
Care partners are essential members of the wellness team for a person with Parkinson's. Learn how to balance the many aspects of being a Parkinson's care partner, how to manage stress and avoid caregiver burnout, how to find and ask for support, and more.
51 minutes | 5 months ago
Every Victory Counts - Part 15 - Parkinson's Surgical Therapies
Hear in-depth information about the Duopa pump, deep brain stimulation, and more.
52 minutes | 5 months ago
Every Victory Counts - Part 14 - Parkinson's Connection, Community, and Hope
Here, we share how helping others helps yourself and how creative arts, spirituality, and hope can bring joy to your life.
52 minutes | 5 months ago
Every Victory Counts - Part 13 - Parkinson's Emotional Health
Learn how to live your best life by managing common Parkinson's symptoms like depression and anxiety through mindfulness, counseling, and other wellness activities.
10 minutes | 5 months ago
Every Victory Counts - Part 12 - Parkinson's Hospital Stays and ER Visits
What to know before checking in, what to ask before discharge, tips from individuals with Duopa or Deep Brain Stimulation, and information about medical alert bracelets.
32 minutes | 5 months ago
Every Victory Counts - Part 11 - Parkinson's Diet and Nutrition
Learn how changes to your diet can help manage certain symptoms, how protein can interfere with medications, and more.
66 minutes | 5 months ago
Every Victory Counts - Part 10 - Living Well with Parkinson's
Learn tips to live well with Parkinson's in any stage and with any symptoms. Here, we share advice on self-care; preventative screenings; dental, bone, heart, and vision health; fatigue; sleep issues; cognitive concerns; constipation; and more.
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