45 minutes | Jul 20th 2020

Episode 151: Managing MS Pain and Fatigue with Dr. Heidi Maloni

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Pain and fatigue are two of the most common and challenging symptoms of MS. These are the symptoms that can stop you from fully engaging in your life at work, at home, with friends, or family.   My guest is Dr. Heidi Maloni. Dr. Maloni is a nurse practitioner and the National Clinical Nursing Director for the Multiple Sclerosis Center of Excellence East at the Veterans Affairs Medical Center in Washington, DC. And Dr. Maloni is an expert on treating pain and fatigue in MS.     Dr. Maloni will share some best practices for managing MS-related pain, we'll talk about some specific medications that can help manage MS-related pain, and we'll also get into the effectiveness of cannabis-based products for managing pain.   And when we talk about fatigue with Dr. Maloni, we'll talk about how to get your friends and family to stop telling you that you're probably just tired, and a nap will fix everything.   We're also talking about why access to affordable healthcare isn't shouldn't be a partisan political issue and what gets lost in the conversation when it is.   If you happen to be an African-American or Hispanic MS patient and you'd like to have a voice in the design of an important MS research study, we'll tell you how you can be a part of that study's Patient Advisory Group. It's an opportunity for the patient perspective to be part of the planning for this study. And it's an opportunity for you to be paid for your participation in that planning.   We'll also tell you about Sidecar, a dramatic short film from SHIFT-MS that illustrates the physical and emotional burden that accompanies MS progression.   And if you're an MS caregiver who would like to contribute to MS research, or you know someone who is, we'll tell you about an online survey just for you.   We have a lot to talk about! Are you ready for RealTalk MS??!

Your access to healthcare shouldn't be a partisan issue, right?  2:25

Join the Patient Advisory Group for the CHIMES study  8:32

DUNK MS is going virtual and raising funds for MS research   10:24

SHIFT-MS debuts Sidecar, their latest short film  20:03

Are you an MS caregiver? There's an online survey for you  20:59

My Interview with Dr. Heidi Maloni  22:19

Share this episode  42:06

Please Support the National MS Society COVID-19 Response Fund  42:26

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society's Ask An MS Expert Video Replay

What You Need to Know About Coronavirus (COVID-19)

National MS Society COVID-19 Response Fund

CHIMES Study Patient Advisory Group questionnaire

DUNK MS

SIDECAR: A SHIFT-MS film about the misapprehensions of advanced multiple sclerosis

Accelerated Cure Project for MS Survey: Caregiver Relationships with Healthcare Providers

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Download the RealTalk MS App for iOS

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RealTalk MS Episode 151 Hosted By: Jon Strum Guests: Dr. Heidi Maloni, Blake Arnet

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, DunkMS, RealTalkMS

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