Diagnosed, But Not Defeated
Meet Cassandra. She’s a mom, a wife, a dancer, a podcast host, a therapist, and also someone who is part of a very small percentage of people with an incredibly rare autoimmune disease. Although her disease is rare, her experience is far too common. In this episode, she shares her experience of getting a diagnosis, only to find out it wasn’t correct, and how her entire life changed in a matter of months. Be sure to check out Cassandra’s podcast, Diagnosed, But Not Defeated for more about her journey, as well as others who also are facing their own health challenges. Available to listen here: https://open.spotify.com/show/0kGxLAx29llOK4sAMPgLkkAnd check it out on Facebook: https://www.facebook.com/DiagnosedButNotDefeated-----Topics discussed in this episode include:misdiagnosis, grief, rare diseases, autoimmune disease, lupus, migraines, dermatomyositis, cancer, hair loss, invisible illness, spoon theory, self care, therapy, family, women’s health-----Helpful resources and links mentioned in and related to this episode: More on dermatomyositis: https://rarediseases.org/rare-diseases/dermatomyositis/ Support groups for women facing hair loss:https://www.hairlossinwomen.org/womens-hair-loss-resources/cope-with-hair-loss/https://www.supportgroups.com/hair-loss Support groups for those with lupus:www.mylupusteam.comwww.lupus.org Spoon Theory: https://www.healthline.com/health/spoon-theory-chronic-illness-explained-like-never-before#1https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/ -----Organizations there to help you in those partly cloudy days:NAMI- National Alliance of Mental Illness- www.nami.orgNAMI Helpline 800-950-6264Or text "NAMI" to 741741 for 24/7, confidential, free crisis counselingOn Instagram @namicommunicate American Foundation for Suicide Prevention- www.afsp.orgCall 800-273-8255 or text TALK to 741741On Instagram @afspnational National Suicide Prevention Lifeline- https://suicidepreventionlifeline.org/Call 1-800-273-825 If you are facing depression, anxiety, or suicidal thoughts, please reach out. Use the resources included here. Call or text a loved one. Talk to someone. Although it may not feel like it at the moment, I promise; You are loved. You are cherished. You are deserving of life.-----All the socials:Like us on Facebook www.facebook.com/partlycloudypodFollow us on Instagram @partlycloudypodWrite us at partlycloudypod@gmail.com Partly Cloudy and Dandelions is created, edited, produced, and hosted by Stephanie Charlton. Art and logo created by Cassandra Whitney. Music by Monplaisir from Pixabay.
