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The LHONReport - With Host Maria Johnson & Brian Boros
24 minutes | 4 years ago
#30: Finding Opportunities, Inspiration, and Mentorship
Sometimes we need to look to others for guidance. We need to be willing to have conversations with people inside, or even outside, the LHON community. Maria and Brian share some of the ways they have found opportunities, inspiration, and mentorship from others who are also living with vision loss.
39 minutes | 4 years ago
#29: An Interview With Joe Brinkley Which includes His Thoughts and Advice on Career Opportunities in the IT World.
Brian talks to Joe Brinkley, who has been affected since the age of 16. Joe works in cyber security and shares some of his thoughts on career choices and finding, or keeping, a job that works for you!
19 minutes | 4 years ago
#28: Story time! More memorable moments of living life with blindness
We all love a good story, especially one that makes us laugh. Maria & Brian share some more funny life situations that they have found themselves in!
39 minutes | 4 years ago
#27: An Introduction to LHON Plus and LHON 2017 Conference updates!
Brian interviews Lisa Thompson about LHON Plus and her experiences living with LHON Plus. And Maria and Brian reflect and discuss this year’s LHON Conference updates.
21 minutes | 4 years ago
#26: Tips for guiding blind walkers… From a blind person's perspective
In a recent blog, Maria gave some helpful advice on guiding blind walkers. Brian and Maria discuss the blog and the reason she wrote it. You can find Maria's lifestyle blog at www.GirlGoneBlind.com
54 minutes | 4 years ago
#25: Adapting to the gym environment and an interview with Matt Leverington from the UK
Finding the right weights, figuring out the treadmill, working your way through a gym environment can be tricky with vision loss. Maria and Brian give their best advice to help ease any frustrations. Brian interviews Matt Leverington from the UK about his diagnosis and experiences living with LHON.
34 minutes | 4 years ago
#24: Losing your ability to drive doesn't mean you can't get to your destination
After becoming legally blind, losing our ability to drive is devastating. We have things to do, and places to go! So, how do we get to these various places? Maria and Brian talk about the transportation options they have used to maintain their Independence.
43 minutes | 4 years ago
#23: What's going on with driverless cars and an interview with Locke Milholland
It seems that driverless cars will be up for grabs in a few years! But, what are the benefits for those who are disabled? Maria and Brian discuss how these cars might help employment and healthcare costs for people who can't drive. Brian also talks to one of the few lawyers in our community, Locke Milholland from Raleigh, North Carolina.
30 minutes | 4 years ago
Season 2 2017- #22: Success, Showers, and Songwriting… It's Story Time!
Marie and Brian share a few recent experiences and pick a few recent Facebook posts that they found interesting enough to talk about! Plus, current information about the 2017 LHON conference coming up in June!
26 minutes | 4 years ago
#21: Holiday Special- The holidays are near, and we are thankful you're here!
Maria shares some of her ideas for great holiday gifts, with Brian talking about the Amazon Echo he wants. They take a look back at what a great first year it's been, and are thankful to all who have supported this podcast!
18 minutes | 4 years ago
#20: The Things We Miss About Your Face
Maria and Brian talk about the absence of facial expressions, nonverbal communication, and eye contact in their visually impaired lives. They share how they Interpret situations or people's emotions by the voices they hear and the vibes they feel.
40 minutes | 4 years ago
#19: “When Your Visual Impairment Isn't Visible”, and an interview with Maryse Roger from France
Brian and Maria discuss the pros and cons of living within an invisible disability. Brian talks with one of our International affected women. Maryse Roger, from France, shares her story and thoughts about living with LHON.
28 minutes | 4 years ago
#18: Things to remember when you think life won't get any better
There are moments when we feel like we will never come out of the darkness. We've all been there. Maria and Brian discuss this emotional issue with an article titled "10 things to remember when it seems like things won't get better".
54 minutes | 5 years ago
#17: Rare disease hot topics and an interview with Taylor Katzel
Maria gives Brian the scoop on her recent trip to the "Global Genes Rare Disease Advocacy Summit" held in Southern California. Brian interviews Taylor Katzel, who's only been affected a few years, from Kingston, Ontario. And shares his thoughts on the “Mind’s Eye”.
14 minutes | 5 years ago
#16: It's not what you dream, It's how you dream it.
After vision loss, what are those nighttime dreams like for you? Are they blurry, cloudy, or perfectly clear? Brian and Maria share some of their own thoughts about dreams and how they see them.
35 minutes | 5 years ago
#15: LHON Paralympian's & Interview with Cameron Macintosh
Maria discusses the similarities between a Paralympic athlete and a mom just getting to the store. The process of stepping out of your blind comfort zone is such a big deal! Brian has an interview with Cameron Macintosh, who recently graduated with a doctorate in physical therapy.
32 minutes | 5 years ago
#14: Birthdays After Vision Loss: Two blind Leos give you their perspective.
It's Brian and Maria's birthday month! These two Leos talk about how birthdays changed after losing vision. From planning your special day and activities to eating cake! It's all here on the blind birthday episode!
43 minutes | 5 years ago
#13: White Cane Trivia and an Interview with Kandace Haney
Maria digs up some fun facts about the white cane and Brian interviews Kandace Haney, a mother of four, about living with LHON.
25 minutes | 5 years ago
#12: Voiceover. It's a love-hate relationship!
Brian and Maria share some experiences about learning, understanding, and using Apple's accessibility feature for the visually impaired. We love it. We hate it. We need it!
49 minutes | 5 years ago
#11: Conference chit chat and an interview with Aaron Reistad
Maria and Brian talk a little bit about the 2016 LHON conference recently held in Seattle, WA. Brian also interviews Aaron Reistad from Colorado about living with LHON.
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