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CW: medical trauma I talk to Jen Brea, filmmaker, activist and ME/CFS patient, about making and watching her documentary, Unrest. See insicknesspod.com for more info. Follow us on Twitter, Tumblr, and Instagram: @insicknesspod

Some thoughts after the amended AHCA/Trumpcare passed the House of Representatives. See insicknesspod.com for more info. Follow us on Twitter, Tumblr, and Instagram: @insicknesspod

Australian Appearance Activist and writer, Carly Findlay, talks about her experience living with Icthyosis, telling our stories on our own terms, the value of our personal information, identity, and the Australian healthcare system. See insicknesspod.com for more info. Follow us on Twitter, Tumblr, and Instagram: @insicknesspod

Today's episode is actually a "rerun" of one of my favorites from last year to mark Trans Day of Visibility, with an updated intro. More new episodes to come soon, but I'm still recovering from the AHCA whirlwind. S. Leigh Thompson talks about the hurdles to diagnosis he's faced as a trans person with complex health issues, healthcare insecurity, getting around the city with mobility limitations, and navigating society with invisible disabilities. See insicknesspod.com for more info. Follow us on Twitter, Tumblr, and Instagram: @insicknesspod

A discussion with disability rights activist, writer and podcaster, Emily Ladau, on the eve of the AHCA vote. See insicknesspod.com for more info. Follow us on Twitter, Tumblr, and Instagram: @insicknesspod

I check in with regular guest, Christopher Snider, for our bimonthly podcast freakout about all things Trump, health policy, and how we’re dealing. We talk more about the state of Obamacare/ACA’s repeal and replace plan, the AHCA (aka Ryancare, Trumpcare, Republicare, etc.) We discuss the bill’s CBO score, another proposed bill flying under the radar that would allow your employer to require genetic testing and have access to those results, ALEC, and his newest podcast project, Mark All That Apply. See insicknesspod.com for more info. Follow us on Twitter, Tumblr, and Instagram: @insicknesspod

The long awaited, so-called republican healthcare bill is here, and it’s weird! I tried to explain it for you. ¯\_(ツ)_/¯ See insicknesspod.com for more info. Follow us on Twitter, Tumblr, and Instagram: @insicknesspod

Regular guest, Christopher Snider, joins me again to talk more about our dystopian reality, developments since we last recorded in November, self-care and escapism (I Love Lucy! Doctor Who! Chewing Gum! Crocheting!), and weaponized information in the age of Trump. Our conversation begins about ~20:00 in See insicknesspod.com for more info. Follow us on Twitter, Tumblr, and Instagram: @insicknesspod

I explain what Obamacare actually is, what the difference is between Obamacare and the Affordable Care Act or ACA (spoiler alert: they're actually the same thing!!), the healthcare law's current status, and what's at stake if it's repealed. See insicknesspod.com for more info. Follow us on Twitter, Tumblr, and Instagram: @insicknesspod

Recurring guest and patient podcaster, Christopher Snider, is back to explain his plan to become the Roman Mars of the patient community. You can subscribe to his shows Just Talking and Two Big Topics wherever you get your podcasts. In this episode we also talked about our election feels [~25;00], and talk about how we’re coping in the aftermath. This conversation was recorded in late November, about three weeks after the election. Like last week’s episode, the later portion of this conversation is more like a time capsule of where we were, emotionally. See insicknesspod.com for more info. Follow us on Twitter, Tumblr, and Instagram: @insicknesspod

You're never gonna get a hot take from me. It'll usually be room temperature, or perhaps even pretty moldy after sitting in the back of the refrigerator for a few weeks. This is the podcast version of my moldy, not-so-hot take on the recent US election. Recorded a week after, it’s not the most articulate I’ve been on the topic, but it is a time capsule of my feelings—which haven't changed much in the time that has elapsed. I felt I had to put this out before I could move forward with the show. If you’re offended by harsh language, this is maybe not the episode for you. See insicknesspod.com for more info. Follow us on Twitter, Tumblr, and Instagram: @insicknesspod

In this episode of the podcast, you’ll hear me talk to a handful of ePatients about sharing their own stories and the delicate balance of telling the stories of others. These conversations touched on themes of identity, privacy, patient experience, using technology to find connection, and ways in which we’re trying to compensate for the many deficits that exist in our healthcare system through that connection and storytelling. This episode was created for the Stanford Medicine X ePatient Storyteller Track. All clips were recorded at the 2016 MedX conference at Stanford University School of Medicine in September 2016. See insicknesspod.com for more info. Follow us on Twitter, Tumblr, and Instagram: @insicknesspod

CW: death and dying It’s our first birthday episode! I decided to do something a little different with it, and asked my oldest friend Casey to interview ME. We talked about why I started the podcast, what the experience of producing it has been like, how it’s been different than what I expected to do, and what might be in store for year two. See insicknesspod.com for more info. Follow us on Twitter, Tumblr, and Instagram: @insicknesspod

I talked to Ryan Prior, co-director and producer of Forgotten Plague, a documentary about ME/CFS. I made Ryan hold the microphone because my arm was tired, and he wound up kind of interviewing me a bit. We talked about ME/CFS, POTS, how the two patient populations overlap, and some of the performative aspects of being a patient. I talked about living with and trying to manage POTS, quality of life, and try to answer the question posed by the MedX Studio Space of how to foster disruptive co-creation in healthcare. This conversation was recorded at the 2016 Stanford Medicine X conference in September, where Ryan and I were both ePatient Delegates on the Storyteller Track. Forgotten Plague is available on Amazon Prime, iTunes, Google Play, and DVD. Amazon Prime members can stream the documentary for free, and foreign audiences can find it on iTunes, where it's available in 7 languages. DVDs are at Amazon.com or ForgottenPlague.com. See insicknesspod.com for more info. Follow us on Twitter, Tumblr, and Instagram: @insicknesspod

CW: discussion of suicide rates and transphobia. UterX (pronounced you-ter-EX) is a collaboration about issues in inclusive gynecological healthcare for trans and gender nonconforming individuals. It was produced by In Sickness + In Health: A Chronic Illness Podcast with Ask Me About My Uterus and MedX Student Advisor + ePatient Delegate, Charlie Blotner, for the 2016 Stanford Medicine X ePatient Storyteller Track. 2016 MedX Student Advisor, ePatient Delegate, and In Sickness + In Health: A Chronic Illness Podcast Junior Uterus Correspondent, Charlie Blotner, joins Cara to discuss issues related to accessing gynecological healthcare for transmasculine individuals. They talk about coverage exclusions for transition-related care, gynecological cancer rates, and the exclusionary nature of the gendered language of reproductive health issues. You can see Charlie's ePatient Ignite! talk, "On self-identity, gender, and their impact on whole-person health," from MedX2015, as well as additional resources and a glossary of terms for the project at: insicknesspod.com/uterX See insicknesspod.com for more info. Follow us on Twitter, Tumblr, and Instagram: @insicknesspod

CW: needles, cannabis use Episode 35b: In this episode, we compare notes about living with Chronic Migraine and our attempts at managing the condition, migraine literacy among doctors we’ve seen, and regularly sticking needles in our heads because that’s somehow preferable to the migraines. We also talk about New York’s restrictive medical cannabis program, harm reduction and empathy, linguistic precision and Kate's Tea & Empathy workshops. See insicknesspod.com for more info. Follow us on Twitter, Tumblr, and Instagram: @insicknesspod

I talked to this week’s guest, Kate Kenfield MPH, for so long we have TWO full episodes for your listening pleasure... Episode 35a: In this episode, Kate Kenfield MPH talks about her experience in the Australian healthcare system while she was getting her Masters in Public Health down under, her work as a freelance sex educator including her recent west coast teaching tour and founding Sex Geekdom and Tea & Empathy, the stigma surrounding sexually transmitted infections and disclosure, and the difficulty of making new friends as a grownup. See insicknesspod.com for more info. Follow us on Twitter, Tumblr, and Instagram: @insicknesspod

In today’s episode, I talk to Keah Brown about her writing, growing up disabled with an able bodied twin sister, visibility and intersectionality, get real about learning to be nice to ourselves, not seeing herself as a black disabled woman represented in media, and what Keah plans to do about it. See insicknesspod.com for more info. Follow us on Twitter, Tumblr, and Instagram: @insicknesspod

I talked to Allie Cashel, author and co-founder of Suffering the Silence about her book, the current state of the complicated issues related to Lyme Disease, writing, certainty, and the stress of living with Lyme Disease and all its baggage. If you missed last week’s episode, I talked to her Suffering the Silence co-founder, Erica Lupinacci, about her health advocacy, media portrayal of chronic illness and disability, challenges she’ll face as an actor with a disability, and doing everything right and still being sick. See insicknesspod.com for more info. Follow us on Twitter, Tumblr, and Instagram: @insicknesspod

CW: weight and diet I talked to Erica Lupinacci of Suffering the Silence about her health advocacy with HIV/AIDS and through STS, her own experience living with Lupus, media representation of chronic illness and disabilities, challenges she’ll face as an actor with a disability, doing everything right and still being sick, illness on social media, the nightmare of American health insurance, and traveling with an unpredictable illness. See insicknesspod.com for more info. Follow us on Twitter, Tumblr, and Instagram: @insicknesspod