The unintentional advocate
Brenda Agnew is the unintentional advocate who continues to speak up, not just for her son with CP, but for all the kids that come after him.Brenda is the proud mother of two boys, Chase and Maclain. Her youngest son, Maclain, has severe cerebral palsy and profound hearing loss as a result of a condition known as Kernicterus, a brain injury that results from untreated jaundice. Since Maclain was diagnosed, she has been tireless in advocating for better systems and programs for children with special needs.There is much personal empowerment in having the ability to provide substantial input on how policies, programs and priorities are created and communicated, and how we incorporate and engage families. Brenda feels blessed to have had great opportunities to create, foster, and grow relationships with professionals, fellow parents and caregivers. Brenda works as a client liaison for Gluckstein Lawyers, helping other families navigate their journey with the legal system, drawing on their own experience after their son’s brain injury. Brenda is a School Board Trustee with the Halton Catholic District School board, as well as a Consultant with Chronically Simple, offering insights and support from a caregiver perspective.Professional Associations, Memberships & Volunteering● Community Council for the American Academy of Cerebral Palsy● CP-Net● CHILD-BRIGHT Citizen Engagement Committee● The Burlington Accessibility Advisory Committee● Family Advisor, PONDA Network● Creator and moderator of PAL ( Parent Advocacy Link), which is an online facebook groupof over 2,000 special needs parents https://www.facebook.com/groups/173295489470728/Social MediaTwitter @PALParentLinkedin Brenda AgnewLink to Published workshttps://www.gluckstein.com/our-team-2/brenda-agnew/https://www.chronicallysimple.com/blog