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FASD Hope

167 Episodes

39 minutes | Jun 6, 2023
167 - FASD Legislative Update AND Run FASD 2023 with Jennifer Wisdahl and Rebecca Tillou
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder, through the lens of parent advocates with over 20 years of living experience.   In this two part episode, Jennifer Wisdahl, COO of FASD United first shares an IMPORTANT FASD Legislative Update and upcoming happenings of FASD United. Part 2  of this episode is a kick off for the Run FASD 2023 registration and information discussion with Rebecca Tillou of Run FASD. The Run FASD Virtual 5K (your way!) will be held from September 9-17, 2023   EPISODE RESOURCES -   FASD United - https://www.fasdunited.org Instagram - https://www.instagram.com/fasdunited/ Facebook - https://www.facebook.com/fasdunited   Run FASD - https://www.runfasd.org Instagram - https://www.instagram.com/runfasd/ Facebook - https://www.facebook.com/groups/489485015438968   FASD Hope - Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://www.twitter.com/fasdhope   HOPE FOR THE FASD JOURNEY MEMBERSHIP COMMUNITY with Sandra Flach and Natalie Vecchione -  https://www.justicefororphansny.org/hope-community
54 minutes | May 23, 2023
166 - All About FASD - Excessive Sugar Consumption and FASD with Dr. Jerrod Brown
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of living experience. Episode 166 welcomes back Dr. Jerrod Brown with our "series within the series" - All About FASD. This month's topic is "Excessive Sugar Consumption and FASD.  Jerrod Brown, Ph.D., M.A., M.S., M.S., M.S. is a professor, trainer, researcher, and consultant with multiple years of experience in teaching collegiate courses. Jerrod is also the founder and CEO of the American Institute for the Advancement of Forensic Studies (AIAFS and the Editor-In-Chief of Forensic Scholars Today (FST). This episode is a deep dive into excessive sugar consumption and FASD. Some of the topics covered in this episode include: how excessive sugar consumption is detrimental to physical / emotional / cognitive/ regulatory aspects of health, how Prenatal Alcohol Exposure can affect the ability to metabolize sugar, why excessive sugar consumption is craved by individuals with brain-based / whole body diagnoses (particularly FASD) and potential resources and strategies to implement a healthier eating lifestyle. * NOTE - This episode is for informational purposes and resource sharing purposes only. It is NOT intended to take the place of a medical professional who is knowledgeable in nutrition and FASD.* EPISODE RESOURCES -  Dr. Jerrod Brown - jerrod1234brown@live.com American Institute for the Advancement of Forensic Studies (AIAFS) -  https://aiafs/com/ Facebook - https://www.faceboook.com/AIAFSTraining Instagram - https://www.instagram.com/aiafsassoc/ Twitter - https://twitter.com/AIAFS2011   FASD Hope Resources -  Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope HOPE FOR THE FASD JOURNEY COMMUNITY with Sandra Flach and Natalie Vecchione - https://www.justicefororphansny.org/hope-community
35 minutes | May 9, 2023
165 - Mom, Author and Navigator - A Conversation with Laura Bedard
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over 20 years of living experience. Episode 165 welcomes back Laura Bedard (Ep. 149 / September 2022) of MASSFAS, an FASD United Affiliate. Laura recently published her second book titled "My FASD Feelings: A Guide to Children's Experience with Fetal Alcohol Spectrum Disorders". Laura is also a Family Navigator with FASD United. In this hope-filled episode, Laura shares: her family's FASD journey, the inspiration behind her second book, how this book is a resource on different levels, FASD United's "Family Navigator" program (and how many people have been assisted through the Family Navigator program), advocating in the trenches of her family's FASD journey and words of encouragement and hope. "FASD United Family Navigator is, confidential, and free. We help caregiver, parents, birth parents, professionals, and individuals with FASD. This also includes people who are pregnant or intending to become pregnant that may have questions about alcohol or substance use. We offer one-on-one peer support, referrals to resources and services, information about prenatal alcohol exposure." EPISODE RESOURCES - FASD United - https://fasdunited.org Family Navigator Program through FASD United - https://fasdunited.org/family-navigator/ The Family Navigator Phone Number that Laura shared in this episode is - 202-785-4584 Mondays - Fridays between 9 am and 10 pm Eastern Time Laura's Books - "My FASD Feelings: A Guide to Children's Experience with Fetal Alcohol Spectrum Disorders" by Jennifer Robinson, Ph.D, LMHC and Laura Bedard, MFA https://www.amazon.com/FASD-Feelings-Childrens-Experience-Disorders/dp/1977260489/ref=sr_1_1?crid=2NIMHG3V6G0DP&keywords=my+fasd+feelings&qid=1683310079&sprefix=my+fasd+feelings%2Caps%2C89&sr=8-1   "My Adoption Feelings: A Guide to Children's Experience with Adoption" by Jennifer Robinson, LMHC and Laura Bedard, MFA https://www.amazon.com/My-Adoption-Feelings-Childrens-Experience/dp/1478773057/ref=sr_1_1?crid=TR63PXTZVMNX&keywords=my+adoption+feelings&qid=1683310147&sprefix=my+adoptin+feelings%2Caps%2C100&sr=8-1   FASD Hope Resources -  Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 HOPE FOR THE FASD JOURNEY COMMUNITY with Sandra Flach and Natalie Vecchione - https://www.justicefororphansny.org/hope-community  
60 minutes | Apr 26, 2023
164 - Welcome Back - We Need More Hope! A Conversation with Jennifer Wisdahl and Natalie Vecchione
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder, through the lens of parent advocates with over 20 years of living experience. It's been over 6 months since Natalie Vecchione has released an episode, which was thought to be the last episode. After much prayer and contemplation, Natalie realized that FASD Hope was needed in the FASD Community, even if the frequency of episodes would be reduced. In this episode, Natalie has a heart to heart conversation with Jennifer Wisdahl, COO of FASD United. Natalie shares her heart and her journey of the past 6 months and what pulled her back to FASD Hope.  Jennifer shares a FASD Legislative Update, the MANY new programs and updates with FASD United and upcoming happenings of FASD United.  Welcome back to FASD Hope! "Hope is being able to see that there is light despite all of the darkness." - Bishop Desmond Tutu   EPISODE RESOURCES - FASD United - https://www.fasdunited.org FASD Hope - Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1  HOPE FOR THE FASD JOURNEY COMMUNITY with Sandra Flach and Natalie Vecchione -  https://www.justicefororphansny.org/hope-community  
7 minutes | Nov 4, 2022
163 - Be Still - Our Final Episode
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. Episode 163 is our FINAL episode of FASD Hope. For over two years, we have been blessed to be a voice for giving IMPORTANT guests a platform to share their journeys, experience, research, clinical work, legislative activity, philanthropy and inspiration for the FASD Community!  Thank you for listening to our small but mighty family podcast about FASD. We're certainly not experts and we're still on this journey, too. It’s now time for us to focus even more on our family, navigate what lies ahead, and face uncertainty with faith and fortitude.  We're SO thankful to be ending this amazing journey by leaving over 160+ episodes of FASD Hope! Thank you for listening, take care and always have HOPE! "The LORD will fight for you; you need only to be still." - Exodus 14:14 Sincerely, Natalie and John Vecchione FASD Hope     
59 minutes | Nov 1, 2022
162 - The Families and The Kids That We’ve Left Behind - A Conversation with Best Selling Author, Andrew Bridge
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. November is National Adoption Month and FASD Hope is honored to highlight Andrew Bridge in Episode 162.  Leaving foster care at eighteen, Andrew Bridge attended Wesleyan University, then graduated from Harvard Law School and he was awarded a Fulbright Fellowship. He began his legal career representing children in mental health facilities across Alabama. His work as an attorney and an advocate enforced children's constitutional rights to be free from staff abuse and to receive meaningful psychiatric care. Andrew returned home to Los Angeles as the CEO of The Alliance for Children's Rights. He defended children at MacLaren Hall, where he was once confined. He won the right for Los Angeles' 60,000 foster children to speak publicly about their treatment. He investigated the excessive removal of African-American babies from their parents, which led to one of the first government initiatives to stop it. Andrew is the Co-Founder of National Adoption Day. He went on to lead one of California's largest recruiters of foster and adoptive parents. Called to address the unjustified placement of foster children in mental institutions, Andrew has served as a Senior Advisor to the State of Illinois. His educational work resulted in the creation of New Village Girls Academy, California's first all-girls high school for parenting teens. Andrew serves on Arizona's Foster Care Review Board and he consults with child welfare systems and foundations. Andrew is also the author of the New York Times AND Los Angeles Times BEST SELLER book, "Hope's Boy: A Memoir". The Washington Post named "Hope's Boy" one of it's Best Books of the Year, with a review that called it "filled with vivid scenes and empathetic description...compulsively readable". In this THOUGHT-PROVOKING episode, Andrew shares: his personal journey and lived experience as a foster child in the Los Angeles Foster Care System, his journey in becoming an attorney and child rights advocate, insights and discussion points from "Hope's Boy", the punitive nature that was / still exists in child welfare systems, his thoughts on how to educate those in the child welfare system about FASD and other brain-based diagnoses, the beginnings of "National Adoption Day" in 2000 and how it's grown, his current work and initiatives and words of hope and encouragement. EPISODE RESOURCES - Andrew Bridge -  Hope’s Boy - https://hopesboy.com  LinkedIn - https://www.linkedin.com/in/andrew-bridge-667860210/   FASD Hope Resources - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ “HOPE FOR THE FASD JOURNEY COMMUNITY”, CO-LEAD BY NATALIE VECCHIONE AND SANDRA FLACH TO LEARN MORE ABOUT “HOPE FOR THE FASD JOURNEY” COMMUNITY OR TO SIGN UP, VISIT THE BELOW LINK -  https://www.justicefororphansny.org/hope-community   Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
41 minutes | Oct 28, 2022
161 - FASCETS Friday - A Family’s Transformation with Lynn and Clare Alsup
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. Episode 161 is the FINAL FASCETS Friday Episode in which Episode 81 Guest, Lynn Alsup of FASCETS and her daughter, Clare, share how their family was transformed by the FASCETS Neurobehavioral Model. Lynn was our first "FASCETS Friday" guest in Episode 81 - airdate September 14, 2021.  In this ENLIGHTENING episode, Lynn and Clare share the following:  Lynn's work in FASCETS and the progress of her upcoming memoir, their family's FASD journey / life before Clare's FASD diagnosis, learning about the FASCETS Neurobehavioral Model and how it TRANSFORMED their family, how their family is doing now, Clare's accomplishments / important insight and words of hope and encouragement. FASCETS RESOURCES - FASCETS Website - https://fascets.org/ Facebook - https://www.facebook.com/FASCETS Instagram - https://www.instagram.com/fascets_inc/ Twitter - https://twitter.com/FASCETS2   FASD Hope Resources - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ “HOPE FOR THE FASD JOURNEY COMMUNITY”, CO-LEAD BY NATALIE VECCHIONE AND SANDRA FLACH TO LEARN MORE ABOUT “HOPE FOR THE FASD JOURNEY” COMMUNITY OR TO SIGN UP, VISIT THE BELOW LINK -  https://www.justicefororphansny.org/hope-community   Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
70 minutes | Oct 25, 2022
160 - The Fellowship of Rural FASD - A Conversation with Rob More
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. Episode 160 celebrates the AMAZING advocacy, work and fellowship of the Rural FASD Support Network (Ontario, CA). The Rural FASD Support Network was founded by a small group of volunteers with personal knowledge of & lived experience with FASD in rural Ontario (Canada). Today's conversation is with Rob More, Secretary of Rural FASD. Rob and his wife Shelley are proud parents of three amazing young adult children impacted by FASD. Rob, Shelley and four other dedicated volunteers are the co-founders of the Rural FASD Support Network of Eastern Ontario, which is currently the largest, nonprofit, lived disability experience in Canada following "Nothing For Us Without Us". In this HOPE-FILLED EPISODE, Rob shares the following:  the history of the Rural FASD Support Network, the exponential growth & key developments of Rural FASD, the diversity & representation of Rural FASD, the exciting legislative update of the National FASD Framework Legislation in Canada (and how Rural FASD and others advocated on Parliament Hill on October 20th), the blessings (and challenges) of living in a rural area as a family of those with FASD and words of hope and encouragement. "As you have therefore have received Christ Jesus the Lord, so walk in Him, rooted and built up in Him and established in the faith, as you have been taught, abounding in it with thanksgiving."  - Colossians 2: 6-7   EPISODE RESOURCES -  Rural FASD - https://ruralfasd.ca/ email - ruralfasd@gmail.com Instagram - https://www.instagram.com/ruralfasd/ Twitter - https://twitter.com/FasdRural   FASD Hope Resources - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ “HOPE FOR THE FASD JOURNEY COMMUNITY”, CO-LEAD BY NATALIE VECCHIONE AND SANDRA FLACH TO LEARN MORE ABOUT “HOPE FOR THE FASD JOURNEY” COMMUNITY OR TO SIGN UP, VISIT THE BELOW LINK -  https://www.justicefororphansny.org/hope-community   Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy BUY IT NOW!
40 minutes | Oct 18, 2022
159 - All About FASD - FASD and Bullying Part 2 With Dr. Jerrod Brown
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. Returning to FASD Hope is regular guest and friend in FASD advocacy, Dr. Jerrod Brown in Episode 159 - "All About FASD - FASD and Bullying Part 2". Jerrod Brown, Ph.D., M.A., M.S., M.S., M.S. is a professor, trainer, researcher and consultant with multiple years of experience teaching collegiate courses. Jerrod is also the founder and CEO of the American Institute for the Advancement of Forensic  Studies (AIAFS) and the Editor in Chief of Forensic Scholar Today (FST).  In this second episode about FASD and Bullying, Jerrod further explores the following topics: why it's critical to have a good knowledge of FASD / bullying, the links between bullying and self-destructive actions, cyberbullying, how bullying erodes mental health in individuals with FASD (and why they are already susceptible with mental health diagnoses), the further implications of bullying to already existing trauma and attachment issues, where to look for resources and words of encouragement and hope. EPISODE 159 RESOURCES - Dr. Jerrod Brown - jerrod01234brown@live.com American Institute for the Advancement of Forensic Studies (AIAFS) - https://aiafs.com Facebook - https://www.facebook.com/AIAFSAssoc Twitter - https://twitter.com/AIAFS2011   FASD Hope Resources - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!
67 minutes | Oct 11, 2022
158 - Breaking the Pipeline - A Conversation with Dr. Deanna Westedt
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. Episode 158 of FASD Hope explores a controversial topic: the School to Prison Pipeline (STPP).  The STPP or SPP is the significantly increased tendency of students from disadvantaged backgrounds, students with brain-based diagnoses, developmental disabilities and BIPOC students to become involved in the juvenile justice system. In today's episode, discussing the STPP and it's implications for students with brain-based diagnoses (including FASD, Autism, ADHD, etc.) is Dr. Deanna Westedt. Dr. Deanna Westedt received a doctorate in curriculum and instruction and spent 22 years in education. Currently, she homeschools and provides guidance for families, both homeschooled and traditionally schooled.  She has a special passion for twice-exceptional students and providing learning that goes outside of a classroom box. Her insights into twice-exceptionality have been featured in publications and venues such as Psychology Today, Future First Education, and CABE. Dr. Westedt’s research was featured in AERA 2020. However, her best accomplishment is that of the growth her boys made during their time in homeschooling so far, where her ideas on how to accommodate their special combination of giftedness and learning disabilities paid off. She currently provides coaching and writing sessions, as well as specializes in early literacy that can be blended into any type of setting. Additionally, she provides parent sessions, diagnostics, and flexible differentiation training for homeschool/ educational organizations. In this highly informative and thought-provoking episode, Dr. Westedt shares the following: her professional background, her family's journey, her passion for creating academic equity for all students, how she became aware of the STPP, how students with brain-based diagnoses (including FASD) become even more susceptible to getting involved in the STPP, addressing how the traditional cycle of discipline reinforces the STPP (especially for students with developmental disabilities & brain-based diagnoses), how a systemic shift is required to break this cycle, how to better support those students involved in the STPP / JJ systems and her words of hope for listeners.  "Trust in the LORD with all your heart, And lean not on your own understanding; In all your ways acknowledge Him, And He shall direct your paths." - Proverbs: 5-6   EPISODE RESOURCES - Dr. Deanna Westedt - https://deannawestedt.com/ info@deannawestedt.com Facebook - https://www.facebook.com/drwestedt Instagram - https://www.instagram.com/dr.deannawestedt/ LinkedIn - https://www.linkedin.com/in/deanna-westedt-ed-d-64a2741b1/   FASD Hope Resources - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/   HOPE FOR THE FASD JOURNEY ONLINE COMMUNITY - Co-Lead By Natalie Vecchione and Sandra Flach -  Hope for the FASD Journey is a faith-based, membership support community for parents and caregivers of individuals prenatally exposed to alcohol and other substances. Led by Natalie Vecchione of the FASD Hope Podcast and Sandra Flach of the Adoption & Foster Care Journey Podcast— 2 moms living the FASD experience. With more than 20 years of adoptive parenting each, Natalie & Sandra offer abundant knowledge and resources to provide hope to families on this journey. “ TO LEARN MORE ABOUT THE “HOPE FOR THE FASD JOURNEY COMMUNITY” OR TO SIGN UP, VISIT THE BELOW LINK -  https://www.justicefororphansny.org/hope-community   Check out our book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!
55 minutes | Oct 4, 2022
157 - Bullied, Broken, Redeemed - A Conversation with Candice Dugger
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. October is National Bullying Prevention Month. Episode 157 welcomes back Candice Dugger (Season 1, Episode 39, Feb. 25, 2021) to highlight her CRITICAL work in bullying awareness / prevention / education  through "Bullied, Broken,  Redeemed". Candice is a nationally-recognized anti-bullying expert, author, speaker and trainer. Candice and her team at Bullied, Broken, Redeemed specialize in equipping leaders, parents and youth on all aspects of Gen-Z Bullying. Candice also is the co-founder of "Reimagine Education Conference", which specializes in helping families transition to homeschool. Finally, Candice is the founder of Kids Business Academy, an organization that comes alongside parents to teach the essentials of entrepreneurship. In this INFORMATIONAL and INSPIRATIONAL episode, Candice explores the following: Candice's family's journey with bullying / starting BBR, statistics, facts about bullying & kids / teens with neurodiversity, myths about bullying, how bullying is a cultural epidemic, key points about bullying, how BBR and her other initiatives support and help heal children / teens who have been through bullying and her words of hope and inspiration for listeners. "Therefore comfort each other and edify one another, just as you also are doing."  - 1 Thessalonians 5:11   EPISODE RESOURCES - Candice Dugger - https://candicedugger.com/index.html Instagram - https://www.instagram.com/cedugger/ Bullied, Broken and Redeemed Facebook - https://www.facebook.com/bulliedbrokenredeemed LinkedIn - https://www.linkedin.com/in/candice-dugger-1a606952/   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!  
52 minutes | Sep 30, 2022
156 - It’s Our Two Year Podversary! With Guest Host Jennifer Wisdahl
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. FASD Hope Podcast is celebrating it's 2 year anniversary ( aka "Podversary")! FASD Hope launched on October 1, 2020. We are airing this milestone episode (a day early) on Friday, September 30th - International Podcasting Day. FASD Hope is thrilled to be active and embraced in both the FASD and Podcasting Communities!  Episode 156 is also a first for FASD Hope, in that our "Most Frequent Guest", Jennifer Wisdahl of FASD United is this episode's GUEST HOST.  Jennifer and Natalie have a heart to heart conversation with much warmth, hope and joy! EPISODE RESOURCES - FASD United -  https://www.fasdunited.org Jennifer Wisdahl of FASD United - wisdahl@fasdunited.org FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!
32 minutes | Sep 27, 2022
155 - Oshays Brain Domain - An Update with Maryelen and Paula McPhail
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience.  Episode 155 welcomes back the AMAZING mother / daughter team of Maryelen and Paula McPhail of Oshays Brain Domain (formerly Oshays FASD). Maryelen is a FASD parent advocate and Paula is an FASD Self-Advocate. Together, they are the leadership behind Oshays Brain Domain - a Social Enterprise based in Ayr, Scotland with a mission of supporting families / children with FASD. Since their previous episode (#66 - airdate July 13, 2021), Maryelen and Paula have wonderful updates about: their global expansion, supports, programs and FASD advocacy initiatives through Oshays Brain Domain!    EPISODE RESOURCES -  Oshays Brain Domain / FASD - https://www.oshaysfasd.org/ Facebook - https://www.facebook.com/oshaysbraindomain Instagram - https://www.instagram.com/oshays_fasd/ Twitter - https://twitter.com/OshaysFASD LinkedIn - https://www.linkedin.com/in/maryelen-mcphail-fasd-969663165/ Email - info@oshays.org Phone - +44 (0) 01292 261094  (Scotland) The FASD Article that Paula wrote / shared - https://metro.co.uk/2022/09/09/my-mums-pregnancy-drinking-caused-me-lasting-damage-17307228/   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!
56 minutes | Sep 23, 2022
154 - FASCETS Friday - FASD in Spouses with Suzanne Emery
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. September is FASD Awareness Month!  FASD Hope is thrilled to welcome back previous guest (Episodes 89, 112) and FASCETS Facilitator, Suzanne Emery for FASCETS Friday! Suzanne Emery has a Master in Leadership Nursing and she is a Family Nurse Practitioner. She is a Certified Facilitator of the FASCETS Neurobehavioral Model and she is a FASCETS Program Director. Today's FASCETS Friday episode topic is "FASD in Spouses". Suzanne has experience working with couples where one of the spouses or partners has a Fetal Alcohol or Neurobehavioral Diagnosis. Given the prevalence of FASD and Other Brain Based Diagnoses, Suzanne shares how determining a suspected FASD or other Neurobehavioral Diagnosis is critical with couples who are encountering tension and unresolvable challenges in their relationships.  Suzanne also discusses the following topics: exploring FASD/NB as the root if there are difficulties in a marriage / relationship, how to know if a spouse were on the FASD spectrum, why seeking a diagnosis (or ruling out an FASD) would be critical in a marriage / relationship, what to do if you suspect your spouse has an FASD, support or training that can help and stories of hope. NOTE - If you are interested in learning more about an online support group for spouses of those adults with FASD, email Suzanne at suzemery28@gmail.com EPISODE RESOURCES- FASCETS - https://fascets.org/ Facebook - https://www.facebook.com/FASCETS Instagram - https://www.instagram.com/fascets_inc/ Twitter -https://twitter.com/FASCETS2 To learn more about the online workshop opportunities given by FASCETS, click on the below link for more information or to register.  https://fascets.org/workshops/ Note - If you decide to sign up for a FASCETS training, please let FASCETS know that you were referred by FASD Hope (as this helps in supporting FASD Hope as an organization).   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!
50 minutes | Sep 20, 2022
153 - Embrace Our Journey with Jeremy Elliott and William G.
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. It's September- FASD Awareness Month! Episode 153 of FASD Hope jumps into the ring of AWESOME FASD Advocacy with Jeremy Elliott and William G. of "Embrace Our Journey".  Jeremy Elliott is a martial arts teacher, champion and owner of United Family Martial Arts in Niagara Falls, Ontario (Canada). He is also a Top 500 Pro Wrestler.  Jeremy created the "Embrace Our Journey" FASD Advocacy campaign with his teen godson, William G, an FASD self-advocate. Together, Jeremy and Will are champion FASD advocates! In this MOTIVATIONAL episode, Jeremy and William discuss: the beginnings of "Embrace Our Journey", the MANY FASD Advocacy events they have for September and October, how martial arts and wrestling has made such a powerful impact (and support) in William's life, the benefits of finding a martial arts school that can be a good fit for students with FASD (or other brain based diagnoses) and their words of hope for listeners. EPISODE RESOURCES - United Family Martial Arts (Canada) - https://www.ufmaniagara.com/ Jeremy Elliott - ufmaniagarafalls1@gmail.com Facebook - https://www.facebook.com/UFMANiagara https://www.facebook.com/JeremyNickVickersElliott Instagram - https://www.instagram.com/jeremyelliottnf/   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!
45 minutes | Sep 13, 2022
152 - FASD, 504’s and IEP’s - A Lesson with Shannon Iacobacci
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with more than twenty years of lived experience. Episode 152 welcomes back two-time guest, Shannon Iacobacci of "Embracing the Brain". Shannon is a mom of multiple children with varying developmental disabilities, including Fetal Alcohol Spectrum Disorder (FASD). As an FASD specialist, Shannon helps families living with FASD. She also helps students with executive functioning struggles, attention, behaviors, memory, social & adaptive skills, and mental health needs.  Shannon's in-depth experience includes being a FASD Specialist, FASD Public Speaker/Trainer for multiple organizations, school districts, Child and Family Services, foster family agencies, & universities, a Certified facilitator - FASCETS Neurobehavioral Model, 18 + years IEP experience. In this RESOURCEFUL and HELPFUL episode, Shannon explores the following topics: her business / services through "Embracing the Brain", IEP / 504 basics, the differences in IEP's for students with FASD vs. other brain based diagnoses, top accommodations that are seen on 504s/IEPs of students with FASD, tips for parents / caregivers when going into 504 / IEP meetings and her words of hope and encouragement (especially for the new school year). "Now may the God of hope fill you with all joy and peace in believing, that you may abound in hope by the power of the Holy Spirit." - Romans 15:13   Shannon's previous episodes on FASD Hope were - Episode 5 -"FASD and Teens" Episode 26 - Climbing Down Holiday Mountain"   EPISODE RESOURCES -  Embracing the Brain website - www.EmbracingTheBrain.com  Email - Shannon@EmbracingTheBrain.com  Instagram - https://www.instagram.com/shannon.iacobacci/ LinkedIn - https://www.linkedin.com/in/shannon-iacobacci-92982016a/  Facebook - https://www.facebook.com/EmbracingTheBrain    FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!      
52 minutes | Sep 9, 2022
151 - FASD at 50 - A Conversation with Dr. Kenneth Lyons Jones and Andrea Torzon
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through he lens of parent advocates with over twenty years of lived experience.  Episode 151 is airing on September 9th - International FASD Awareness Day titled "FASD at 50" with Dr. Kenneth Lyons Jones and Andrea "Andy" Torzon, LMFT of the University of California San Diego School of Medicine's Institute for Fetal Alcohol Spectrum Disorders Discovery. This important episode highlights returning guest, Dr. Kenneth Lyons Jones, who is considered the leading expert in FASD and who was one of two doctors at the University of Washington, who first identified Fetal Alcohol Syndrome (FAS) in the United States in early 1973. Dr. Jones is joined by Andrea Torzon, LMFT, a family therapist who works with Dr. Jones at the UC San Diego's Institute for FASD Discovery. As the 50 year anniversary of the first identification of FAS approaches, this special episode is titled "FASD at 50" and shares highlights from Dr. Jones' Keynote presentation "FASD at 50" from NOFASD Australia's "The FASD Forum '22 Virtual Conference". In addition to Dr. Jones' highlights from this important presentation, Andrea "Andy" Torzon shares her work and professional perspective of working with families at the UC San Diego Institute for FASD Discovery and through her nonprofit organization "Twinkle, Twinkle LIttle Farm".  Together, Dr. Jones and Andy discuss the following topics: the stigma that continues to surround FASD 50 years after the identification of FAS, the "4 Critical Issues" in understanding and moving forward in the FASD community, the importance of reframing wording and discussions to reduce stigma associated with FASD,  the importance of establishing FASD Centers of Excellence in each state and their words of hope and encouragement.   EPISODE RESOURCES - Dr. Kenneth Lyons Jones -https://www.rchsd.org/doctors/kenneth-lyons-jones-md/ https://betterbeginnings.org/who-we-are/leadership/ https://betterbeginnings.org/who-we-are/leadership/dr-kenneth-lyons-jones-md/ https://medschool.ucsd.edu/som/pediatrics/Divisions/dysmorphology/about/Pages/Dysmorphology_Teratology_Division_Members.aspx https://pediatrics.med.ubc.ca/2018/03/20/a-retrospective-look-at-43-years-of-fetal-alcohol-spectrum-disorder-fasd-how-did-we-get-here-from-where-we-started/ https://www.facebook.com/UCSDcbb/ https://twitter.com/ucsdcbb https://www.instagram.com/ucsdcbb/ Andrea "Andy" Torzon - https://betterbeginnings.org/what-we-do/patient-care/fetal-alcohol-spectrum-disorder-clinic/programs/ Twinkle, Twinkle Little Farm Nonprofit - LinkedIn - https://www.linkedin.com/in/andrea-andy-torzon-576b2283/ Facebook - https://www.facebook.com/twinkletwinklelittlefarm Instagram - https://www.instagram.com/twinkletwinklelittlefarm/ YouTube - https://www.youtube.com/channel/UCNPSUMYBTDDObZvdXhZ_mdQ   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!
27 minutes | Sep 8, 2022
150 - Let’s Go! - Run FASD 2022 Virtual 5K Finale
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. FASD Hope is HONORED to be a part of TEAM RUN FASD 2022, which is Coach Rebecca Tillou, Jenn Wisdahl, Susan Elsworth and Natalie Vecchione. Episode 150 is “Let’s Go”,  an update, important information & the official launch for this 2nd Annual Virtual 5K for FASD! The Run FASD Virtual 5K will be held September 9th - 25th, 2022. It's not too late to register, registration is open until September 14th, 2022. Listen to this final update of Run FASD 2022 Virtual 5K and learn how you can participate, promote and support this 2nd Annual Virtual 5K for FASD! EPISODE RESOURCES - Run FASD Virtual 5K website - https://runfasd.org/ Instagram - https://www.instagram.com/runfasd/?hl=en Facebook - https://www.facebook.com/groups/runfasd FASD United - https://fasdunited.org/ FASD HOPE RESOURCES -FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!
29 minutes | Sep 6, 2022
149 - MASS FAS - A Conversation with Kristen Eriksen and Laura Bedard
FASD Hope is a podcast series about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. September is FASD Awareness Month!  Episode 149 highlights Kristen Eriksen and Laura Bedard of MASS FAS, an FASD United Affiliate. Kristen and Laura are both moms of children with FASD and united in their advocacy in their leadership of MASS FAS. In this ENCOURAGING episode, Kristen and Laura share: how they became parent advocates (from their respective families' journeys), how MASS FAS has grown in the past year, what they have learned as FASD parent advocates, their advice for parents who want to take that leap into FASD parent advocacy, the many offerings of MASS FAS for Massachusetts (and beyond), their upcoming work for MASS FAS and their words of encouragement and hope.   EPISODE RESOURCES -  MASS FAS website - https://www.massfas.org/ Facebook - https://www.facebook.com/massfetalalcoholsyndrome Instagram - https://www.instagram.com/massfas1/ Twitter - https://twitter.com/massfas1   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!
69 minutes | Sep 1, 2022
148 - All About FASD Special Edition - A Panel Discussion with Dr. Jerrod Brown
FASD Hope is a podcast about Fetal Alcohol Spectrum Disorder (FASD), through the lens of parent advocates with over twenty years of lived experience. It's September, which is FASD Awareness Month!  Episode 148 welcomes back Dr. Jerrod Brown to continue our series within the series “All About FASD Special Edition- A Panel Discussion". This month, Jerrod will be answering a variety of questions / subtopics within FASD. Jerrod Brown, Ph.D., M.A., M.S., M.S., M.S. is a professor, trainer, researcher and consultant with multiple years of experience teaching collegiate courses. Jerrod is also the founder and CEO of the American Institute for the Advancement of Forensic Studies (AIAFS) and the Editor-in-Chief of Forensic Scholars Today (FST). In this FASD RESOURCE AND INFORMATION PACKED episode, Jerrod answers questions from FASD podcasters around the world! Our FASD Podcast Panelists include: Kurt Lewis, Pregnancy and Alcohol, The Surprising Reality Podcast Gilberto Spencer-Wired Differently - Rewire Your Brain Podcast Robbie Seale, FASD Family Life Podcast Sandra Flach - The Adoption and Foster Care Journey Podcast Natalie Vecchione- FASD Hope Podcast Episode 148 Resources - Dr. Jerrod Brown - jerrod1234brown@live.com American Institute for the Advancement of Forensic Studies (AIAFS) - https://aiafs.com/ Facebook - https://www.facebook.com/AIAFStraining Instagram - https://www.instagram.com/aiafsassoc/ Twitter - https://twitter.com/AIAFS2011 LinkedIn - https://www.linkedin.com/in/aiafs/?miniProfileUrn=urn%3Ali%3Afs_miniProfile%3AACoAABntPzUB2qCg_fmbOMKXQbRSlzI9pSfdRG4   FASD Hope - https://www.fasdhope.com/ natalie@fasdhope.com Instagram - https://www.instagram.com/fasdhope/ Facebook - https://www.facebook.com/fasdhope1 Twitter - https://twitter.com/fasdhope LinkedIn- https://www.linkedin.com/in/natalie-vecchione-17212160/ Racket - @fasdhope Clubhouse - @natalievecc Check out our  book “Blazing New Homeschool Trails: Educating and Launching Teens with Developmental Disabilities” by Natalie Vecchione & Cindy LaJoy  BUY IT NOW!
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