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Childhood Cancer Talk Radio Podcasts

262 Episodes

58 minutes | Mar 3, 2023
Jack's Heart for Ukraine Supports Kids-of-Ukraine, with US Outreach Coordinator Devan Tatlow
We bring you this interview with Devan Tatlow once more just after the year anniversary of the terrible war waged upon Ukraine by its neighbor Russia, to bring attention to the work of Kids-of-Ukraine and the fundraising efforts to support them at this powerful moment. Through March 24, the event hosted by Jack's Angels and Charity Footprints brings attention to, and supports financially with event proceeds, the critical work of "Kids-of-Ukraine" and their work in rescuing children with cancer and their families in the war-torn country. Devan Tatlow gives us a precious window into the realities faced by children with cancer and their families, caregivers, and the challenges faced in the collaborative international effort to help the people of Ukraine.
55 minutes | Feb 24, 2023
Shining A Light on Grief with Susan Lataille, Author
Susan Lataille joins us today live to share her book series with the latest edition, Shining a Light on Grief, real women sharing real stories of love and loss, coming in April 2023. Susan has been producing professional events for the wellness industry in and around her community in Rhode Island for over 12 years. Since the passing of her son Nathan in 2017, she has been guided to help others through the grieving process, and in 2021, she was ready to take the step to become a Certified Master Grief Coach. She now assists others along their own grieving journey by offering love, compassion, and understanding, widening her reach with this book series and the powerful stories shared therein.
58 minutes | Feb 10, 2023
Our Nation's Best: A Kid Again, with Kathy Derr
Today's show features an interview with Kathy Derr, Co-Founder and Director of Family Engagement for A Kid Again, a national organization with a mission to foster hope, happiness and healing for children with life-threatening health conditions and their families. The organization provides cost-free, consistent, year-round activities that create meaningful shared experiences and joy-filled memories. A Kid Again serves families in all 50 states, growing and enrolling families, and providing support resources and connections to help families cope with the challenges of raising children with difficult medical journeys. With more than 1.5 million children across the United States suffering from life-threatening conditions, A Kid Again is committed to reaching as many of these impacted families as possible.
54 minutes | Jan 27, 2023
Tabletochki and Kids of Ukraine, with Devan Tatlow, US Outreach Coordinator
Replay of the December 15 interview as we prepared the Charity Footprints fundraiser to begin 2/24/2023 to support Kids-of-Ukraine's critical work helping children with cancer and their families in our war-torn sister country. Tabletochki, the Ukrainian charity which helps children with life-threatening diseases in Ukraine and in surrounding countries, had begun building a state of the art children's oncology hospital before the war began, and its work has been put on hold. How much catch up will need to be done with reconstruction, we simply cannot know at this time.
58 minutes | Dec 30, 2022
Full Interview, Chief Mission Officer Andy Woods with cc-TDI
From contented stone mason living the dream with his family in beautiful Montana, to scientific investigator at the leading US biotech institute for childhood cancer research, here is an amazing story! Today's show brings to you the complete interview with Andy Woods, Chief Mission Officer with Children's Cancer Therapy Development Institute in the outlying western suburbs of Portland Oregon. Andy gives us generous insight into family life before a life threatening diagnosis for his daughter, and how this event triggered a career transition which was nothing short of divinely guided, as Andy's early contributions to the institute literally enabled the advent of an effective therapy for her disease where there had been none before. The family story portion of this interview was included with the 11-24-2022 Thanksgiving show, along with an interview with Dr. Charles Keller, founder of the Institute.
57 minutes | Dec 16, 2022
Kids-of-Ukraine, with Devan Tatlow
Featured today is our host's highly anticipated interview with Devan Tatlow, US Outreach Coordinator for Kids-of-Ukraine, the US Chapter of the Ukrainian charity Tabletochki. As our host was blessed with the opportunity to meet Devan amid the September childhood cancer community festivities in Washington DC, we are pleased to present this interview not only to underline the importance of our mission of greater public childhood cancer awareness, but the added importance of realizing just how much more difficult life is for children diagnosed with cancer and their families in Ukraine, and the importance of supporting the organization that helps them.
55 minutes | Nov 25, 2022
CC-TDI MISSION: Make Childhood Cancer Universally Survivable
Scientific Director Dr. Charles Keller, and Andy Woods, Chief Mission Officer of Children's Cancer Therapy Development Institute in Beaverton, OR, discuss in depth their roles with the Institute and the experiences that motivate their commitment to make all childhood cancers survivable. In its first 7 years, cc-TDI has helped move 2 potential therapies into nationwide phase I trials; its works, discoveries and innovations have been published, notably in Nature, Scientific American, NPR, and the Portland Business Journal among others with over 58 scientific publications, and through unique innovation developed a process to expedite 5 drugs to clinical trials annually for children.
58 minutes | Nov 18, 2022
The Story Behind HRES404 and Jack's Angels: Sandra Beck Interviews Janet
This episode of Childhood Cancer Talk Radio features the work of master interviewer Sandra Beck turning the tables on Janet Demeter, host of Childhood Cancer Talk Radio. Janet's personal account and story of her son Jack, and story of Jack's Angels Foundation are featured as well as the final push for the DIPG Awareness Resolution, H. RES. 404 in the 117th Congress House of Representatives.
58 minutes | Nov 11, 2022
A Moment of Magic Foundation with Kylee McGrane, Founder
Kylee McGrane is the Founder and Executive Director of A Moment of Magic Foundation and is our featured guest of today's episode. She is a President George H.W. Bush Daily Point of Light Honoree, a Sara Blakely and Spanx Red Backpack Fund Recipient, and a New York Yankees HOPE Week Honoree. To date, A Moment of Magic has engaged more than 1,300 college student volunteers from more than 30 colleges and universities to partner with 300+ hospitals and NPO's to provide creative programming to more than 100,000 children.
59 minutes | Oct 21, 2022
"A Short Primer on Why Cancer Still Sucks," with Dr. David. J. Stewart
Dr. David J. Stewart's newly published book, "A Short Primer on Why Cancer Still Sucks," is an informative call-to-action for the newly diagnosed and for those who care for them, fortified with decades of experience with both the Canadian and US systems of cancer-care. With host Janet Demeter, Dr. Stewart shares his background of experience and real life anecdotes guiding the framework of this witty and essential resource for cancer patients and caregivers.
62 minutes | Oct 14, 2022
PART II: Excerpts from the Moonshot4Kids Congressional Briefing on Childhood Brain Cancer
This episode features excerpts from the Moonshot4Kids Congressional/OSTP Briefing Beginning with an introduction from Congressman Michael McCaul, Founder and Chairman of the Childhood Cancer Caucus, who shares the pioneering spirit of the childhood cancer awareness movement. Keith Desserich, founder of the Cure Starts Now, shares the basic history of this trailblazing organization dedicated to the homerun cure for cancer. The Carson Leslie Foundation is represented by Gerald McDougall Board Chairman, Ripley Martin, Director, and Dr. Michelle LeBeau, CSO of CPRIT; Dr. Brigitte Widemann (NIH/NCI), Dr. Will Parsons, PI/Pediatric MATCH Trial, and Dr. Marcelo Ortigao, scientific researcher and DIPG dad, are among the presenters, brought to you by Bexion Pharmaceuticals.
52 minutes | Oct 7, 2022
Moonshot4Kids Hero of the Year: Dr. Charles Keller with CC-TDI
This week's podcast features a recent, pre-recorded interview with the Scientific Director of the Children's Cancer Therapy Development Institute, with its mission to eradicate childhood cancer in all of its forms. Dr. Charles Keller shares with us the beginnings of the Institute, the challenges they have met over the last 7 years, and the influence of the late, great Megan Bugg and her powerful advocacy on the next steps for the Institute. Also included in this podcast is a sneak-peak into the Moonshot4Kids childhood brain cancer briefing that is being shared with the House Health Subcommittee of Energy and Commerce. Dr. Keller submitted, in 2020, a powerful testimony about the unmet medical needs of children with cancer which truly showcases his powerful advocacy for children, which is presented at the end of the podcast as a preview to a public premier on youtube of the briefing material on Saturday, Oct. 8 at 8pm ET.
57 minutes | Sep 30, 2022
Team Jack Foundation: On A Mission To Cure Childhood Brain Cancer
The Team Jack Foundation grew out of the dedicated community of Atkinson, Nebraska rallying around Jack Hoffman, childhood brain cancer survivor. Kylie Docter, CEO joins us to tell the story of how, with support from the University of Nebraska, Husker Athletics and people all across the country, the Foundation has expanded its reach and impact to push for a cure for childhood brain cancer, uniting and bringing hope to families everywhere fighting the #1 disease-related killer of American children.
58 minutes | Sep 16, 2022
Songs of Love: Inspiration in Service of Children
John Beltzer, CEO and Founder of "Songs of Love" Foundation shares with Childhood Cancer Talk Radio the personal inspiration behind the Songs of Love Foundation, based in New York City. As a way of providing sick children with an ongoing source of comfort and joy, and a therapeutic tool for healing, he set out to create personalized, one-of-a-kind songs for them beginning in 1996. The Songs of Love Foundation is a 501(c)(3) charitable organization which creates personalized songs for children and teens struggling with a life-threatening illness or lifetime disability, free of charge. Each song is professionally produced with lyrics containing the child's name, references to his or her favorite activities, things, people, and pets, and written and performed by a variety of talented professionals in the child's preferred musical style (pop, r&b, rap, rock, alternative, etc). The song is delivered to the child via custom USB drive with an accompanying lyric booklet. Songs of Love is dedicated to the memory of John’s twin brother Julio who wrote and recorded the composition ‘Songs of Love’ just two months before he died on April 12, 1984.
55 minutes | Sep 9, 2022
CCTalkRadio Features the 2022 Moonshot4Kids Congressional/OSTP Briefing Part I
To promote the first airing and subsequent youtube feature of DIPG Advocacy Group's Childhood Brain Cancer Briefings, Part I of this Childhood Cancer Talk Radio recap includes expert and patient testimony and the highly acclaimed natural killer cell cancer breakthrough science with NKORE Biotherapeutics Tracy Ryan, CCO and Dr. Anahid Jewett, Chief Science Officer. ADr. Adam Green of Children's Hospital CO, University of CO Denver, and DIPG survivor Nicole Puglisi from Clifton, NJ, are featured.
56 minutes | Sep 2, 2022
Texas Leads with the Carson Leslie Foundation, CPRIT, and Congressman McCaul for a Cancer Moonshot for Kids
Featured in this episode which opens Childhood Cancer Awareness Month 2022, is Congressman McCaul's opening remarks to the Moonshot4Kids Childhood Brain Cancer Briefing on May 17, 2022. A unique window into testimony follows his remarks which will be included in a video briefing for Members of the House Health Subcommittee of Energy and Commerce regarding the importance of the DIPG Awareness Resolution as a catalyst for needed systemic change to better accommodate research for the deadliest childhood cancers. Ripley Martin and Gerald McDougall, Board Member and Chairman of the Board for the Carson Leslie Foundation in Dallas, TX, share their unique perspective on what challenges are faced in prioritizing research for childhood brain cancer for industry and pre-clinical research, #1 being that "people just don't know" the struggle in the pediatric cancer research space. Michelle LeBeau, Chief Scientific Officer for the Cancer Prevention and Research Institute of Texas shares with us CPRIT's leadership and innovation in pediatric cancer research, being second only to the NCI in its investment commitments. And Dr. Brigitte Widemann, Special Advisor the the NCI Director on pediatrics, shares with us the latest and most hopeful developments and innovations at NCI and the Cancer Moonshot Initiative. Dr. Will Parsons, Principle Investigator for the Pediatric Match Trial shares the latest developments for pediatrics in precision medicine and the shared challenges in medulloblastoma and DIPG research. This represents a fraction of the briefing material to be submitted to the Health Subcommittee and House Leadership this September in support of a floor vote for H. Res. 404, the DIPG Awareness Resolution.
59 minutes | Aug 26, 2022
Megan Bugg's Legacy: The Mission Continues
Today’s show features the story of Megan Bugg, an inspired and determined teenage girl who was a fierce advocate and unstoppable force for childhood cancer awareness and research. Despite the tragic and recent end to her physical life, her spirit lives on in her legacy and loved ones to whom she’s entrusted the continuance of her mission, to end childhood cancer through raising awareness and funding research. In that order, Megan's never "why me" but instead "what I can do" philosophy of life kept her on track and successful in raising well over a million dollars for research and not resting until she was certain that her mission would be continued. Megan's father, Dr. Kent Bugg coming to us from Coal City near Chicago Illinois, and a personal friend of Megan and previous guest of this show, Leanna Headley with Our Amazing Fighters in Richmond Virginia, each give us a personal window into the life of this inspirational and unforgettable young woman.
57 minutes | Aug 19, 2022
Your Angels Are Real with Malena Rodriguez, Alex and Ana-Mari Carr
Meet Malena Rodriguez, a therapist transformed to spiritual counselor and intuitive healer, and the amazing Carr family in Miami Florida. Alex and Ana-Mari Carr lead Dean's Dream Foundation, inspired by their 2 year-old son Dean who tragically died of a deadly brain tumor. The Carr's story of loss yet acknowledgement of the greater dimensions of love and life, and Dean's continued existence with them, is truly inspirational. We appreciate their generosity in sharing a window into their experience in a live session with Malena. For more information about Malena's work, visit alignwithmalena.com. And, to donate to important family support and research for pediatric brain tumors, visit deansdream.org.
57 minutes | Aug 5, 2022
Lorraine Tallman with Amanda Hope Rainbow Angels
Amanda Hope Rainbow Angels, a finalist for the 2022 Greater Phoenix Chamber’s Impact Awards, is hosting its 10th Annual "Night of Hope" Gala on September 24, 2022. Lorraine Tallman CEO joins us to share the story of her daughter, the inspiration for the foundation.  During her three-year fight with leukemia and nine-month battle with a brain tumor, Amanda Hope dreamed that one day she would design a fun clothing line for kids just like her that would provide comfort and dignity during chemo treatments. Her life ended all too soon, but her dream lives on through the foundation's Comfycozy's for Chemo apparel; her legacy continues with the expansion of these programs and services. The Tallman family's unique background and love for travel and other cultures lends insight into the development of this beautiful dream and the charitable work that the clothing itself supports, addressing the challenges and the needs of children and young people worldwide. Visit AmandaHope.org for more information about the upcoming event and/or to be involved with this ongoing philanthropic work with global impact.
58 minutes | Jul 29, 2022
More than A Memoir; A Way of Life with Carolyn Breinich
Author and childhood cancer survivor Carolyn Breinich joins us to raise awareness for childhood cancer and share her memoir, Faith, Hope and Cancer: The Journey of a Childhood Cancer Survivor.  Carolyn shares from first-hand experience the many untold realities of surviving childhood cancer after having battled ALL, and the importance of faith, hope, and helping others in this success. Armed with faith, hope and advocacy, Carolyn now lives a charmed life on the road, traveling the United States and enjoying its many wonders with her husband Lee and their two dogs.
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