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Celiac Straight Talk
28 minutes | Jun 23, 2021
Episode 31: Family Ties with Kari Wells
In this edition, Beyond Celiac CEO Alice Bast sits down with Kari Wells, producer and former cast member on the Bravo show Married to Medicine. They dive into Kari’s celiac disease journey, discuss the benefits of travel, offer advice for the newly diagnosed, and reflect on what has improved in our community over the last 20 years. This episode and all episodes released in 2021 have been filmed over video chat in accordance with COVID-19 social distancing protocols.
33 minutes | May 25, 2021
Episode 30: Finding Strength after Celiac Disease—An Interview with Miss Kansas USA Gracie Hunt
In this episode of the Celiac Straight Talk podcast, Beyond Celiac CEO Alice Bast sits down with Miss Kansas USA Gracie Hunt as she recounts her transition from competitive athletics to the world of pageantry, and how her celiac disease journey has influenced her decisions along the way. This introspective conversation on unwanted, unexpected change and the stigma surrounding celiac disease has insights for anyone struggling to come to terms with a life that they could never have predicted.
20 minutes | May 12, 2021
Episode 29: The Beyond Celiac Science Plan
Beyond Celiac CEO Alice Bast and Chief Scientist and Strategy Officer Dr. Salvatore Alesci sit down with News Reporter Diana Rocco to discuss the Beyond Celiac strategy for finding treatments toward a cure for celiac disease by 2030. To Beyond Celiac, a cure means those with celiac disease can live healthier lives and eat without fear. Our mission has evolved to one of advancing the science of celiac disease because we firmly believe that with a strategic approach to funding-focused research, an effective treatment or cure could be possible by 2030. With your support, Beyond Celiac will be the catalyst for the next wave of practical celiac disease research efforts.
21 minutes | Apr 15, 2021
Episode 28: Jessica Kapusta and her Superb Sauces
Welcome to season three of the Beyond Celiac podcast, Celiac Straight Talk! We're excited to bring you more stories, research, and news about celiac disease. Our first guest is Jessica Kapusta, an entrepreneur who's putting her experience with celiac disease to good use by developing delicious gluten-free sauces. COVID-19 put a hold on manufacturing, but you can get a sneak peek at the taste with her new cookbook, John + Jane's Sauces (excerpt below). What led her to start her own food business? What were her barriers in getting diagnosed with celiac disease? And what did preliminary taste tests of the sauces reveal? Click the play button and find out! John + Jane's Sauces: Pow Pow Sauce Ingredients: 1 cup mayo 1 tbsp hot sauce, chili oil, or red pepper flakes. Adjust quantity for heat preference 2 tbsp lemon juice 2 tsp garlic powder 1 tbsp gluten-free soy sauce 2 tsp maple syrup (can substitute honey, another sweetener, or leave out to make sugar-free) Step 1 and done: whisk all the ingredients together! Where's Jessica? You can find Jessica on Instagram.
27 minutes | Jan 11, 2021
Episode 27: The Gaer Family's Story
The first podcast of 2021! In this episode director of communications, Claire Baker spoke with Courtney and Mitchell Gaer about celiac disease in their family. Courtney speaks on her experiences as a mother caring for a child with celiac disease and the journey of how Mitchell was finally diagnosed. Mitchell speaks about what it's like being diagnosed and living with celiac disease as a young man. He is now in college and offers great advice on successfully living gluten-free as a college student. We also touched on non-celiac gluten sensitivity (aka gluten intolerance) which they believe Mitchell's younger brother has. We thank the Gaer family for sharing their story with us as it offers great insight and advice for those whose lives are affected by celiac disease and gluten intolerances.
45 minutes | Oct 4, 2020
Episode 26: Dr. kari Nadeau's New Book!
We discussed Dr. Nadeau’s new book, The End of Food Allergy which is out now. Dr. Nadeau, who is on the Beyond Celiac Scientific Advisory Council answered viewer questions from the live stream and held a great conversation about different food allergies and diseases including...you guessed it! Celiac Disease. Download the Celiac Straight Talk Podcast on Itunes, Stitcher and Google Play Now!
23 minutes | Sep 27, 2020
Episode 25: Gluten-Free Travel With Suzanne
The Gluten Free Destinations blog has become popular for those traveling on a strict gluten-free diet. Suzanne, the owner of the blog recently sat down with Beyond Celiac to share her experiences eating gluten-free around the world. She shares her own celiac disease story, tips and tricks for traveling on a gluten-free diet and more. You can find her Gluten Free Destinations blog HERE. Thanks to Suzanne for coming on! We enjoyed the conversation and hope you do as well. Enjoy.
51 minutes | Sep 4, 2020
Episode 24: Emma is back!
Emma Leger was a part of Beyond Celiac's very first summer intern council (SIC) for college students. She was a big hit when she shared her story on Instagram as part of the SIC Instagram takeover, so we're thrilled that her and her mom came back to share their story on the podcast. We covered what its like being a parent of a child with celiac disease, what its like growing up with celiac disease, challenges faced while attending college on a strict gluten-free diet, Emma's experience working with Beyond Celiac, and lots more! Big thanks to Emma and her mom for coming on! We hope you enjoy.
40 minutes | Aug 28, 2020
Episode 23: Registered Dietitian, Julie Kennedy
In episode 23 of the Celiac Straight Talk podcast we welcomed Julie Kennedy, registered dietitian and owner of Julie Kennedy Nutrition. They discuss Julie's journey with celiac disease, her work as a registered dietitian and her connection to Beyond Celiac. Julie can be found on her website Juliekennedynutrition.com and on social media @Juliekennedynutrition. We really enjoyed this one and hope you do too! For all of your celiac related information please visit BeyondCeliac.org.
17 minutes | Aug 7, 2020
Episode 22: Step Beyond Celiac 5k
Beyond Celiac is taking our entire 2020 Step Beyond Celiac 5K series to the virtual streets with a multi-city tour for individuals and teams across the country to support celiac disease research efforts. Five event dates are planned between August and October! Join us for one or many with our 3 and 5 city tour options. The Step Beyond Celiac 5K is a family-friendly event and fundraiser for Beyond Celiac. We encourage all participants to raise funds by running or walking 3.1 miles either in the event cities or right where you are in support of research efforts for treatments and a cure. Lace-up your running shoes, train, raise money, and run (or walk) a 5K (3.1 miles) to improve the quality of life for children and adults affected by celiac disease. All participants receive a Step Beyond Celiac 5K shirt if they register before the t-shirt deadline. 2020 5 City Tour 5k Schedule: Boston – August 9 – 16 Kansas City – September 13 – 20 Philadelphia – September 26 – October 3 Dallas – October 10 – 18 Denver – October 18 – 25
27 minutes | Jul 31, 2020
Episode 21: Michael Savett from the Gluten Free Philly Blog
We talked with Michael Savett of the popular Gluten Free Philly blog. Beyond Celiac Director of Communications Claire Baker talks to Michael Savett of Gluten Free Philly about gluten-free life, his son's journey growing up with celiac disease and getting gluten-free goodies at Philly stadiums.
11 minutes | Jul 24, 2020
Episode 20: Asia's Story
Asia shares her personal story with celiac disease. Find out what its like being 18 years old living with celiac disease. Asia addresses some of the unseen struggles that many people face while living with celiac disease.
34 minutes | Jul 17, 2020
Episode 19: Living With Celiac Disease Part 2
Part 2 On November 15, Beyond Celiac held its 2nd research summit. The 2019 Summit built on the results of our innovative 2015 summit, which was widely hailed as highly impactful and led to new scientific collaborations and sharpening of the focus of celiac disease physician scientists. Our 2019 summit took place against the backdrop of at least 12 clinical trials for celiac disease treatments. Our aim was to comprehensively address elements that must be in place to get a drug to market, including the remaining barriers in this decades-long journey to help patients with celiac disease. Listen as the patient panel share their stories about what its like living with celiac disease. Sharing your story will give researchers an up-to-date understanding of what life is truly like with celiac disease. It is only with information from people with celiac disease that we accelerate research, including that of the drugs in the development pipeline, in order to find a treatment for celiac disease. Your story is the missing piece of the celiac disease puzzle. Joining Go Beyond Celiac will help break down the walls between our community and scientists so we can work hand-in-hand towards a better life with celiac disease.
30 minutes | Jul 3, 2020
Episode 18: Living with Celiac Disease
On November 15, Beyond Celiac held its 2nd research summit. The 2019 Summit built on the results of our innovative 2015 summit, which was widely hailed as highly impactful and led to new scientific collaborations and sharpening of the focus of celiac disease physician scientists. Our 2019 summit took place against the backdrop of at least 12 clinical trials for celiac disease treatments. Our aim was to comprehensively address elements that must be in place to get a drug to market, including the remaining barriers in this decades-long journey to help patients with celiac disease. Listen as the patient panel share their stories about what its like living with celiac disease. Sharing your story will give researchers an up-to-date understanding of what life is truly like with celiac disease. It is only with information from people with celiac disease that we accelerate research, including that of the drugs in the development pipeline, in order to find a treatment for celiac disease. Your story is the missing piece of the celiac disease puzzle. Joining Go Beyond Celiac will help break down the walls between our community and scientists so we can work hand-in-hand towards a better life with celiac disease.
42 minutes | Jun 30, 2020
Episode 17: June Book Club Discussion
In this podcast, the Beyond Celiac book club (Claire, Amy Maria and Bill) discussed In Memory of Bread by Paul Graham. A funny, poignant memoir of one man’s struggle to come to terms with his celiac disease diagnosis, forcing him to reexamine his relationship with food. This podcast was taken from the live zoom discussion held on the Beyond Celiac facebook page. The video can be found here.
32 minutes | May 29, 2020
Episode 16: Beyond Celiac Book Club Discussion
This is a special Beyond Celiac Book Club (BCBC) edition. The discussion is on the book I Contain Multitudes: The Microbes Within Us and a Grander View of Life by Ed Yong. Video of our May 20th discussion can be found on our facebook page. Enjoy!
27 minutes | May 22, 2020
Episode 15: Beyond Celiac Ambassador Arturo Chacon Cruz
Claire and Arturo Chacon Cruz chat (and sing) about his experiences with celiac disease, life during the pandemic, celiac awareness month and more. Audio taken from their Facebook live video from May 19, 2020.
23 minutes | May 15, 2020
Episode 14: Celiac Disease and College
Valerie is on Beyond Celiacs patient and family advisory council. She is a Junior at Vanderbilt University and has celiac disease. In this weeks podcast Valerie talks about her journey getting diagnosed with celiac disease and the challenges she faced when looking at colleges.
9 minutes | May 8, 2020
Episode 13: Kids and Family
Claire chats with Lindsey about her experiences with celiac disease. Both her and her young daughter have celiac disease. The conversation covers diagnosis, kids, family life and challenges faced. Beyondceliac.org
27 minutes | Apr 24, 2020
Episode 12: Book Club Discussion
Beyond Celiac Book Club (BCBC) Edition A special Beyond Celiac book club discussion! The group read and reviewed brain on fire by Susannah cahalan. Audio taken from their live discussion on April 15th which can be found on the Beyond Celiac facebook page.
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