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AlzAuthors: Untangling Alzheimer's & Dementia

87 Episodes

65 minutes | Mar 14, 2023
Cindy Weinstein Untangles Finding the Right Words in Dementia Care
Cindy Weinstein is an English professor at the California Institute of Technology and the author of the award-winning Finding the Right Words: A Story of Literature, Grief, and the Brain, based on her experience with her father's early onset Alzheimer's in the 1980's. During her father's illness she was a graduate student at the University of California at Berkley, separated from her family in Florida by more than 3,000 miles. Her family's dementia journey had a long-lasting impact on her, and decades later she decided to write a book about it with the assistance of neurologist Bruce Miller, MD. It's the tale of a daughter's grief, of how she was studying and mastering language while her father struggled with word-finding. This irony intrigued her to the point she went on to study neurology herself with an interdisciplinary group of scientists, artists, social scientists, and physicians at The Global Brain Health Institute based at the University of California at San Francisco and Trinity College, Dublin. During this time, she worked with Dr. Miller on Finding the Right Words, which won third place in Memoir Magazine's 2022 Memoir Prize for Books. Cindy was born and raised in Verona, New Jersey. She received her B.A. in English and American Literature from Brandeis University, after which she went to UC Berkeley for her Ph.D. in English. She is currently the Eli and Edythe Broad Professor of English and has been at the California Institute of Technology since 1989, during which time she has published three monographs on American literature, edited several volumes, and taught classes on Herman Melville, Edgar Allan Poe, Women’s Fiction, and Black literature. She has had several administrative roles at Caltech, including Vice Provost and Chief Diversity Officer. In this episode, we discuss the shock of her father's death and her lifelong grief, her desire to study the language that surrounds a dementia diagnosis and her mission to help others by writing a book about it, and how working with Dr. Miller helped her better understand the changes dementia brought to her father's brain. After the Podcast Read Cindy's AlzAuthors post: Cindy Weinstein’s Memoir of Father’s Early-Onset Alzheimer’s Purchase Finding the Right Words: A Story of Literature, Grief, and the Brain Note: We are an Amazon Associate and may receive a small commission from books sales. Connect with Cindy Amazon.com Website: Finding the Right Words – Cindy Weinstein & Dr. Bruce Miller (weinsteinandmiller.com) Cindy Weinstein – Professor Of English – Caltech | LinkedIn Instagram Mastodon Other Mentions Emory and Aging Center UCSF Bruce Miller, MD Ruth Stevens Podcast Susan Farese, MSN, RN, Podcast Sign up for Laura Davis' Writing Workshop *** About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store
53 minutes | Feb 28, 2023
Susan Farese MSN, RN Untangles Poetic Expressions in Dementia Care
Poetry, whether reading or writing it, can be a powerful tool to ease our dementia caregiving journey, allowing us to express our deepest emotions, unravel our confusion and angst, and learn from and understand others. Susan J. Farese, MSN, RN is the author of Poetic Expressions in Nursing: Sharing the Caring, poems written when she became a nurse poet in the 1990's. Heartbreaking memories of losing her grandmother, Ann, to early onset Alzheimer's when she was a young teen inspired her first poem, Ann's Zest Ends.  In this episode, we discuss how witnessing her grandmother's decline as a child profoundly impacted her even 50 years later, why a chance scene in a movie inspired her to start writing poetry, and the value of poetry as expression for nurses and caregivers. A native of New Jersey, Susan has decades of experience in health care and communications, including military and civilian nursing practice, management, education/training, public speaking, research, and consulting. She is owner/president of SJF Communications, based in San Diego, California. SJF Communications provides public relations, marketing, social media, websites, writing, filmmaking, acting, public speaking, mentoring and photography. She currently teaches "Capturing Your Creativity with Haiku" workshops and has published poetry and articles on a variety of topics. In addition to being on the advisory board of San Diego Film Week, Susan is a member of SAG-AFTRA,  American Legion Post 43, Veterans in Media & Entertainment, San Diego Writers Ink  the San Diego Press Club, the Southern California Writers Association, the Army Nurse Corps Association.  Since 2017, she has been a Mentor in San Diego State University’s Aztec MentorProgram. April is National Poetry Month Please join us on April 18th at 2 pm when we present Poetry for the Dementia Journey, an AlzAuthors Live! Virtual Q&A featuring several of our poets. Subscribe to our website at alzauthors.com to receive notice of these events. After the Podcast Read Susan's AlzAuthors post: Susan J. Farese Reflects on Alzheimer’s and Nursing in Poetry Buy the book: Purchase Poetic Expressions in Nursing: Sharing the Caring Note: We are an Amazon Associate and may receive a small commission from books sales. Listen to Susan read Ann's Zest Ends, her tribute to her grandmother, on Audible Connect with Susan Website Facebook Business Page  Instagram @sjfcommo  Twitter @sjfcommo Contact: sjfcommunications@gmail.com *** About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network.   Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store    
53 minutes | Feb 15, 2023
Angela Gentile Untangles Dementia Caregiver Solutions
Angela G. Gentile, MSW, RSW, is the author of two books in the AlzAuthors collection. She came to us in 2016 with her book, Caring for a Husband with Dementia: The Ultimate Survival Guide, inspired by her experience counseling eight amazing caregiving women. Her second book, Alzheimer’s, Dementia, & Memory Loss: A Helpful Guide for Caregivers, was recently published and was featured on our blog on February 10th. Her books have been referred to as "a first aid kit," for caregivers. A social worker specializing in geriatrics with more than 25 years' experience, Angela currently works as a consultant to assist families on a dementia journey using a variety of modalities. Her carer spans work in healthcare, private practice, long-term care, home care, and non-profits, and she has written seven books and countless articles, contributed to two books, and co-authored a mobile app for iOS called Dementia Caregiver Solutions. In 2021, she started up a little hobby business called Gentle Angel Treasures, which includes her handcrafted bracelets and jewelry made from genuine, semi-precious, crystal healing gemstones. Angela is married, has two adult children, and lives in Winnipeg, Manitoba. When she is not working or making jewelry, she enjoys writing, travelling, photography, and exploring what it means to age well. In this episode we discuss the value of working with a social worker one-on-one to navigate the myriad of issues related to dementia care, how language affects discussions around dementia, the upside to using humor in caregiving, and the realities of canine cognitive dysfunction, aka doggie dementia. After the Podcast Read Angela's AlzAuthors posts: add the second Caring for a Husband with Dementia: Self-Help Book Educates, Supports and Comforts Purchase Angela's books: Caring for a Husband with Dementia: The Ultimate Survival Guide Alzheimer’s, Dementia, & Memory Loss: A Helpful Guide for Caregivers Note: We are an Amazon Associate and may receive a small commission from book sales. Check out Dementia Caregiver Solutions, app Watch the video for Brent Hoag's song, "Sail On, which he wrote as a poem for his wife, Sally, who lives with Alzheimer’s. The words were put to music by Songfinch and are sung by Effee. Connect with Angela Website Facebook  Dementia Caregiver Solutions Support Group on Facebook Instagram  YouTube  *** About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store
56 minutes | Jan 31, 2023
Annette Wick and Pauletta Hansel Untangle Creative Writing for Caregivers
This podcast is a duet with authors Annette Jannuzzi Wick and Pauletta Hansel, both of Cincinnati, Ohio, who are not only good friends but collaborators on writing workshops. Both have cared for mothers with dementia. Annette is a writer, speaker, and author of I’ll Have Some of Yours: What my mother taught me about dementia, cookies, music, the outside, and her life inside a care home, essays inspired by her dementia journey. Pauletta is a poet, essayist, and teacher who was Cincinnati’s first Poet Laureate (2016-2018). She is the author of Palindrome, a collection of poetry inspired by her personal caregiver experience. In this episode, we discuss their upcoming creative writing workshop for caregivers, beginning February 16, 2023, how digging deep through creative writing can be a therapeutic tool, and family dynamics in caregiving. After the Podcast Read Annette's AlzAuthors post: Writing Restores a Mother-Daughter Relationship in "I’ll Have Some of Yours" Read Pauletta's AlzAuthors post: Poetry Book on Dementia Caregiving: Palindrome by Pauletta Hansel Buy the books I’ll Have Some of Yours: What my mother taught me about dementia, cookies, music, the outside, and her life inside a care home (Three Arch Press) Palindrome (Dos Madres Press, 2017) Note: We are an Amazon Associate and may receive a small commission from books sales. Mentions Caregiver Writing Workshop Caregivers Writing Journal Storms of the Inland Sea Before the Diagnosis, Volume 2 Connect with Annette Website  (includes links to blogs) Find You in the Sun (blog) Instagram Facebook LinkedIn Twitter Medium Connect with Pauletta Website Facebook *** About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit our donor page. Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network Member of the New York City Podcast Network Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store    
74 minutes | Jan 11, 2023
Tom and Karen Brenner Untangle Reaching the Unreachable
Tom and Karen Brenner have a passion for helping those with dementia and their families connect on a meaningful level. Both bring their professional experience to their work. Tom is a gerontologist who specializes in creating dementia care programs that are strength-based and positive leaning. Karen is a Montessori educator who co-founded a Montessori school for children who are deaf. They have worked together for the past twenty years researching and implementing the application of the Montessori Method to dementia care. After years of working directly with people living with dementia and their caregivers, they have published two books about their work: The Montessori Method for Connecting to People with Dementia, and You Say Goodbye and We Say Hello: The Montessori Method for Positive Dementia Care. Based in Chicago, they travel throughout the United States presenting workshops, training programs, and speaking engagements about their uplifting and positive approach to dementia care. In this episode, we discuss the beauty of being in the moment, how to change the conversation around dementia, and practical methods to reach people who may seem unreachable. After the Podcast Read the Brenner's AlzAuthors posts Tom and Karen Brenner write, You Say Goodbye and We Say Hello: The Montessori Method for Positive Dementia Care Tom and Karen Brenner Write 2nd Book: The Montessori Method for Connecting to People with Dementia  Purchase the books You Say Goodbye and We Say Hello: The Montessori Method for Positive Dementia Care The Montessori Method for Connecting to People with Dementia Note: We are an Amazon Associate and may receive a small commission from books sales. Connect with Tom & Karen Email: tandkbrenner@gmail.com Twitter: @BrennerPathways Resources Dr. Cameron Camp and the Center for Applied Research in Dementia *** About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network.   Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store    
64 minutes | Jan 3, 2023
Tryn Rose Seley and Mary Crescenzo Untangle Dementia and the Arts
Welcome back to the podcast! This episode is a duet with two of our authors who happen to be years long friends brought together by their work in dementia care and the arts. Tryn Rose Seley and Mary Crescenzo are award winning authors and master teaching artists who have each worked for decades to empower caregivers and enhance the lives of those living with dementia. In this episode, we discuss the value of the creative arts in dementia care, how caregivers can use these modalities at home, and, for the first time, we have singing on the podcast! For more details on our guests, please see the show notes. Let's get started! About the Authors Tryn Rose Seley is an award-winning author and a master teaching artist. Through her experiences with the creative arts, she witnesses a profound transformation in people living with dementia, from lower energy to higher energy, and more happiness and satisfaction, which leads to more comfort and success during daily routines of care. This work inspired her to write a book to teach others how to bring out the best in each other, develop positive relationships, and build trust and effective interactions between care partners. This book, 15 Minutes of Fame: One Photo Does Wonders To Bring You Both Back to Solid Ground, won a Firebird Book Award in the “Inspiration” category in 2022. Mary Crescenzo is one of five 2022 Individual Winners of the Maude’s Awards for Innovation in Dementia Care. She is a multi-hyphenate artist working as an author, playwright, blogger, podcaster, singer, director, and actor. She is the author of The Planet Alzheimer’s Guide: 8 Ways the Arts Can Transform the Life of Your Loved One and Your Own, and has written and produced the play, Planet A. As a teaching artist for decades with an intergenerational approach, her current focus is on social engagement art for older adults, including those with Alzheimer’s and Dementia. After the Podcast Read Tryn's AlzAuthors post: Find Advice for Dementia Caregiving in Book by Tryn Rose Seley: 15 Minutes of Fame Mary's AlzAuthors post: Mary Crescenzo Engages with Alzheimer’s Through the Arts  Purchase 15 Minutes of Fame: One Photo Does Wonders to Bring You Both Back to Solid Ground, by Tryn Rose Seley The Planet Alzheimer’s Guide: 8 Ways the Arts Can Transform the Life of Your Loved One and Your Own, by Mary Crescenzo Note: We are an Amazon Associate and may receive a small commission from book sales.  Connect with Tryn Website: Caregiverheart.com Email: trynrose@gmail.com Facebook Linked In Connect with Mary Instagram Twitter Alzheimer's Speaks blog Podcast LinkedIn Dementia Map Facebook Website Clink to play excerpt: Planet A (originally titled, Piece of Mind) *** About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store    
61 minutes | Dec 12, 2022
BONUS EPISODE: Untangling Caregiver Reads From Every Genre
This episode is a replay of a recent panel discussion the management team did with Sue Evans of Kensington Senior Living. You'll hear us share our personal caregiving stories, and we'll explain why we chose to share them in our books. We'll also talk about the value of storytelling in caregiving and the many resources in our collection to support your journey. As this was a video event, you'll hear references to visuals you cannot see in a podcast. I recommend you queue up our website – AlzAuthors.com - and follow along during the virtual tour of the bookstore. Meet the Panelists Marianne Sciucco: Retired Innkeepers Struggle With Alzheimer’s in Blue Hydrangeas, a Love Story Jean Lee: Jean Lee Writes Her Family Memoir, Alzheimer’s Daughter, About Becoming The Caregiver To Both Parents  Vicki Tapia: Both parents had dementia, Vicki Tapia writes compelling memoir: Somebody Stole My Iron Ann Campanella: Inspiring Alzheimer’s Book: Motherhood: Lost and Found by Ann Campanella Susan Landeis: Susan Landeis Cares for Her mother with Lewy Body Dementia: In Search of Rainbows  Note: We are an Amazon Associate and may receive a small commission from book sales.  Kensington Senior Living *** About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network.   Want to be on the podcast? Here’s what you need to know. AlzAuthors.com Shop our Store    
67 minutes | Dec 6, 2022
Untangling Dementia with Difficult People
In this AlzAuthors Live! Virtual Q&A Dementia with Difficult People (November 8, 2022) you'll meet four of our authors who either cared for a parent who had hurt them in the past, or dealt with siblings who made caregiving difficult, or both. A professional mediator is also on hand to offer advice on how to navigate a dementia journey with a difficult person. Potential discussion topics: Heeding the call to care Reckoning with the past Setting aside differences Problems/issues encountered Forgiveness Building a support network without family Our Panelists Kimberly Best, RN, MA is the author of How to Live Forever, A Guide to Writing the Final Chapter of Your Life Story. She is a speaker and trainer on conflict management, transitions, and difficult decisions, including end of life issues. She is the owner of Best Conflict Solutions, focusing on Conflict Coaching, Civil, Family, Healthcare, and Elder Mediation in Franklin, Tennessee. Read Kim’s AlzAuthors post here. Malia Kline is the author of Sisterly Shove, a memoir that tells the story of when she and her sister took on their parents’ care despite their personal differences. She is the younger sister in the book. Read Malia’s AlzAuthors post here. Susan Landeis is a member of the AlzAuthors management team and Board of Directors. She is the author of In Search of Rainbows: a daughter’s story of loss, hope, and redemption where she writes about the gifts she found while caring for her mother with whom she’d had a tumultuous relationship. Read Susan’s AlzAuthors post here. Barbara Ella Milton, Jr. PhD, LCSW is the author of Heeding the Caregiver Call: The Story of Barbara Ella Milton, Sr. and Alzheimer’s Disease. This tells the tale of her caring for her estranged mother when she was diagnosed with Alzheimer’s disease while she herself endured treatment for bladder cancer. Read Barbara’s AlzAuthors post here. Vicki Tapia is a co-founder of AlzAuthors and a member of the management team and Board of Directors. She is the author of Somebody Stole My Iron: A family memoir of dementia, which chronicles her story of caring for both parents with dementia. She and her mother shared a difficult relationship, and Vicki found herself without the assistance of her only brother who chose to deny, rather than participate in, the situation. Read Vicki’s AlzAuthors post here. About the Podcast Our podcast brings you insightful, moving interviews with our authors who share their personal dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. We are a WCN Featured Podcast Proud to be on The Health Podcast Network Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store
60 minutes | Nov 14, 2022
Building a Legacy of Love with Christy Byrne Yates
Welcome to the third and last episode in our 2022 Summer Book Series with HFC featuring Christy Byrne Yates, MS. Christy is an expert in navigating the challenges and opportunities in life, including living in the “Sandwich Generation” (those raising children who are also caring for an aging parent), special needs education, and parenting. A former school psychologist, she applied many of the skills used in her work in her approach to caring for both of her parents, who each had dementia, while raising her own two children. She is the author of Building a Legacy of Love: Thriving in the Sandwich Generation. This episode is a replay of our August 16th HFC Summer Book Series. We discuss the gifts bestowed when we plan for our end-of-life needs, surviving life when you’re in the middle of the caregiver sandwich, and the bittersweet decisions that must be made when juggling caring for ill or aging parents while raising kids. After the Podcast Read Christy's AlzAuthors post: Christy Yates Helps Caregivers Raising Children Ease the Squeeze Purchase Building a Legacy of Love: Thriving in the Sandwich Generation on Amazon Note: We are an Amazon Associate and may receive a small commission from books sales. Connect with Christy Website with blog Twitter  Facebook Instagram LinkedIn *** About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store    
73 minutes | Nov 1, 2022
Laura Davis Untangles Caring for a Parent Who Betrayed You in the Past
Laura Davis and her mother had a troubled relationship that began in her teenage years. It seems Laura did not live up to her mother's expectations. They were often at war with each other and grew estranged over decades, finally coming to some sort of functional truce after Laura became a mother herself. When her mother was in her eighties and showing signs of cognitive decline, she surprised Laura by moving cross-country from her home in New Jersey to live near Laura and her family in California. Laura's memoir, The Burning Light of Two Stars, tells her dramatic story of becoming caregiver to her mother who had betrayed her in the past. Her inspiring book is not only raw and honest but filled with compassion and forgiveness. Laura is also the author of six other non-fiction books, including The Courage to Heal, Allies in Healing, I Thought We‘d Never Speak Again, and Becoming the Parent You Want to Be. Her groundbreaking books have been translated into 11 languages and sold 1.8 million copies. In addition to writing books that inspire, the work of Laura’s heart is to teach. For more than twenty years, she’s helped people find their voices, tell their stories, and hone their craft. Laura loves creating supportive, intimate writing communities online, in person, and internationally. You can learn about Laura’s books and workshops, read the first five chapters of her memoir, and receive a free e-book: Writing Through Courage: A 30-Day Practice at www.lauradavis.net In this episode, we discuss mending broken relationships, caregiving for a loved one with dementia who has caused you great pain, and the healing power of writing. After the podcast Read Laura’s AlzAuthors post: Laura Davis Shares How She and Her Mother Recovered from an Embattled Relationship Start reading The Burning Light of Two Stars now. Buy on Amazon. Note: We are an Amazon Associate and may receive a small commission from book sales. On Audible:  https://www.audible.com/pd/The-Burning-Light-of-Two-Stars-Audiobook/B09G8WJQP7 And on Libro.fm for independent stores: https://libro.fm/audiobooks/9781950144471  Independent Bookstores: Get Signed Copies Through Bookshop Santa Cruz: https://www.bookshopsantacruz.com/burning-light-two-stars-get-it-signed) Bookshop.org: https://bookshop.org/books/the-burning-light-of-two-stars-a-mother-daughter-story-9781954854161/9781954854161 Laura recommends: Moving a Parent with Memory Loss by Laurie White and Beth Spencer Connect with Laura Davis Website Facebook @LauraDavis&TheWritersJourney Instagram @laurasaridavis *** About the Podcast Our podcast brings you up close and personal with authors who share their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. We are a WCN Featured Podcast Proud to be on The Health Podcast Network Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store
64 minutes | Oct 18, 2022
Surfing the Waves of Alzheimer's with Renee Harmon, MD
Welcome to the second in our 2022 Summer Book Series with HFC. In this episode, Renée Harmon, MD, author of Surfing the Waves of Alzheimer's shares her story of caring for her husband, Harvey, who had younger-onset Alzheimer's. This interview was recorded on July 12th. Christy Byrne Yates, MA moderated. We discuss the importance of acknowledging your vulnerability while caregiving, asking for and accepting help, why a good support group can make all the difference, and how to rewrite your script when dementia enters your story.   About Renée Harmon, MD Renée Brown Harmon, MD, is a retired family physician in Birmingham, Alabama. After eighteen years of sharing a thriving medical practice, her husband, Harvey, was forced to retire after a diagnosis of younger-onset Alzheimer’s disease. Dr. Harmon cared for her husband for the eight years of his illness while maintaining their medical practice and rearing their two teenage daughters. The challenges of caregiving while working and parenting full-time led her to a deep appreciation for all caregivers. Connect with Renée Website Instagram Twitter Facebook About Christy Byrne Yates, MA Christy is the mother of two – now adult – children. She is an expert in navigating the challenges and opportunities in life including living in the “Sandwich Generation” (those raising children who are also caring for an aging parent), special needs education, and parenting. She incorporates meditation, mindfulness practices and Emotional Freedom Techniques (EFT) into her work along with other evidence-based practices to support growth, goal achievement and a pathway to living your best life now. In California she is a Licensed Educational Psychologist (LEP), an author, speaker, and coach. She is the author of Building a Legacy of Love: Thriving in the Sandwich Generation available on Amazon. After the Podcast Read Renee’s AlzAuthors post: Renée Harmon, MD Teaches Caregivers Through Memoir of Spouse’s Early Onset Alzheimer’s Purchase Surfing the Waves on Amazon Note: We are an Amazon Associate and may receive a small commission from book sales. About the Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. We are a WCN Featured Podcast Proud to be on The Health Podcast Network Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store
45 minutes | Oct 4, 2022
Dementia Care Around the World, Part One
In this AlzAuthors Live! Virtual Q&A we explore the similarities and differences caregivers and those living with dementia encounter as they seek care and search for solutions to the many questions and problems a dementia diagnosis brings. The authors featured in this event represent the United States, Canada, and Argentina. We hope their stories will inspire and empower you on your own dementia journey. Topics included: • obtaining a diagnosis • accessing care • community resources • financial concerns • insurance considerations • home care, assisted living, long-term care • stigma surrounding a dementia diagnosis This discussion was recorded on September 13th, 2022. Note: This event was originally scheduled with three of our authors - Cindy Weinstein (US), Donna Thomson (Canada), and Katya De Luisa (Costa Rica) - but heavy rainstorms prevented Donna and Katya from participating, although we did get to hear from Donna briefly. Both Donna and Katya have been on the podcast in the past. You can find their episodes here: https://alzauthors.com/podcast . Thankfully, many of our participants shared their experiences and we had a well-rounded discussion. The speakers: Marianne Sciucco, New York, US: https://alzauthors.com/2018/05/02/meet-marianne-sciucco-alzauthors-admin-and-author-of-blue-hydrangeas-an-alzheimers-love-story/ Cindy Weinstein, California, US: https://alzauthors.com/2022/01/18/cindy-weinstein-finding-right-words/ Donna Thomson, Canada: https://alzauthors.com/2020/02/04/unexpected-journey-caring-thomson-white/ Ethelle Lord, Canada: https://innocareofdementia.com/news/ethelle-lord-the-warrior-of-dementia-who-is-she/ Virginia Naeve, California, US: https://anewpathformom.com/ Dennis Dulniak, Florida, US: https://www.nanasbooks.org/ Luis Cordero, Argentina and Chicago: https://www.davidson.edu/news/2022/04/19/watson-fellows-ready-tackle-questions-health-and-well-being-around-world Vicki Tapia, Montana, US: https://alzauthors.com/2018/05/15/meet-vicki-tapia-alzauthors-admin-and-author-of-somebody-stole-my-iron/ We hope to revisit this subject with authors from other countries in the future, so please keep in touch with us at https://alzauthors.com. You can follow us on social media - Facebook, Twitter, Instagram, and LinkedIn - to stay updated on events, new authors, books, and resources. Remember: You are not alone. One can sing a lonely song, but we chose to form a choir, and create harmony. About the Podcast Our podcast features authors who share their dementia journeys, talk about what led them to tell their stories in whatever medium they’ve chosen, and offer unique and painfully earned insights into life with dementia. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com Want to be on the podcast? Here’s what you need to know.
52 minutes | Sep 20, 2022
Susie Singer Carter Untangles Alzheimer's in Film and Podcasts
Susie Singer Carter is a Los Angeles-based creative specializing in film and podcasting. She’s a writer, director, producer, and actress. She’s also an advocate for dementia caregivers having been on a journey with her own mother for 16 years. This inspired her to write, direct and produce the 2018 Oscar Qualified short film, “My Mom and the Girl,” starring Valerie Harper in her final performance. She’s also the host and producer of the award-winning podcast “Love Conquers Alz,” launched in December 2019, which received Best Podcast 2020 from the New Media Film Festival for Episode 6 featuring Leeza Gibbons. Susie is proud to have served as one of the faces seen in several awareness campaigns for Alzheimer’s Los Angeles, where she also trained to be a volunteer speaker. Unfortunately, Susie's beloved mother Norma Pecora passed away after we recorded this interview. In this episode, we discuss her long, exhausting, enriching dementia journey, how it made her a “better person,” and the idea that Alzheimer’s is sort of like The Curious Case of Benjamin Button. After the Podcast: Please leave a review and share this podcast with a caregiver or loved one on a dementia journey.  Read Susie’s AlzAuthors post Watch My Mom and the Girl Trailer: Vimeo YouTube Complete film: Amazon Apple TV Listen to or watch “Love Conquers Alz” Connect with Susie Singer Carter: IMDB WEBSITE MY MOM AND THE GIRL FACEBOOK TWITTER INSTAGRAM LINKEDIN WIKIPEDIA LOVE CONQUERS ALZ LINKS I LOVE LUCIFER LINKS Other references The Curious Case of Benjamin Button Dopesick *** About the Podcast Our podcast features authors who share their dementia journeys, talk about what led them to tell their stories in whatever medium they’ve chosen, and offer unique and painfully earned insights into life with dementia. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. AlzAuthors.com Want to be on the podcast? Here’s what you need to know.
66 minutes | Sep 7, 2022
AlzAuthors Untangles A Collection of Stories to Support Your Caregiving Journey
The podcast you are about to listen to is a recording of an event we did with Kensington Senior Living in June, 2022. "On the Same Page this Summer: A Collection of Stories to Support You on Your Caregiving Journey" features four authors discussing their personal dementia experiences. You'll hear from a young woman whose mother was diagnosed with early onset Alzheimer's when she was just 25; a professional in dementia care with strategies to help you manage your own situation; a mom in the "sandwich generation" who shares how she balanced care between her school-age children and her parents with dementia; and a psychologist who has investigated and encountered "shared death experiences." This is an insightful, inspiring episode and you're sure to walk away with greater confidence and knowledge to guide your own dementia journey. Please join us for our next live event on September 13th at 2 pm eastern time when we discuss Dementia Care Around the World with three authors representing the United States, Canada, and Costa Rica. For more details, visit our website. Watch this panel presentation on YouTube After the Podcast Learn more about these authors: Christy Byrne Yates Christy Yates Helps Caregivers Raising Children Ease the Squeeze AlzAuthors and HFC Present Summer Book Series Podcast: Christy Byrne Yates, MS Untangles Dementia Care and the Sandwich Generation Lauren Dykovitz Millennial Caregiver Writes About Mom With Early Onset Alzheimer’s Lauren Dykovitz Shares Story of Mother’s Final Dementia Days Three AlzAuthors Featured in Chicken Soup for Soul Book Podcast:  Untangling Life as a Millennial Caregiver with Lauren Dykovitz Tammy Anastasia Tami Anastasia Comes Full Circle with the Dementia Journey William Peters SharedCrossing.com Note: We are an Amazon Associate and may receive a small commission from book sales. Visit Kensington Senior Living, a premier senior living operator and developer bringing the highest quality senior care to America’s most sought-after locations. *** About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a Whole Care Network Featured Podcast Proud to be on The Health Podcast Network Also on UK Health Radio and The NYC Podcast Network Want to be on the podcast? Here’s what you need to know. Thanks for listening.  AlzAuthors.com Shop our Store        
73 minutes | Aug 24, 2022
Daniel Gibbs, MD Untangles His Personal Battle Against Alzheimer's Disease
Daniel Gibbs is a retired neurologist confronting his own early onset Alzheimer’s. His is a unique perspective once the doctor diagnosing other people’s cognitive issues and now the patient facing his own. Alzheimer’s disease was never on his radar, he says, because both of his parents died in midlife from cancer, but he unexpectedly discovered through genealogical research that he has two copies of the APOE-4 allele, putting him at very high risk for dementia. He has written his story in a memoir, A Tattoo on My Brain: A Neurologist’s Personal Battle Against Alzheimer’s Disease, where he reveals his personal story and explains how it is possible to decrease the risk and slow the progression of the disease through lifestyle modifications, especially when started early. In this episode, we discuss the value of testing for the Alzheimer’s gene, the importance of life plans, concerns regarding work and retirement, and the Viacom documentary currently in production about his dementia journey. After the Podcast Read Dr. Gibbs AlzAuthors post: Neurologist, Dr. Daniel Gibbs, Reveals His Personal Story in A Tattoo on my Brain Start reading A Tattoo on My Brain https://amzn.to/3zD6IlO Note: We are an Amazon Associate and may receive a small commission from book sales. Other authors/books mentioned: Thomas DeBaggio, Losing My Mind: An Intimate Look at Life with Alzheimer's Slow Puncture: A Memoir About Living Well with Early Onset Alzheimer’s by Peter Berry and Deb Bunt Wendy Mitchell Writes Courageous Memoir of Younger Onset Dementia: Somebody I Used to Know Tracey Shorthouse’s Poetry Provides a Glimpse into Early Onset Alzheimer’s Laurette Klier Creates Nana’s Books: Nostalgic Picture Books for Seniors Susan Ostrowski Helps Seniors with Cognitive Issues Enjoy Reading Again Greg O’Brien, On Pluto: Inside the Mind of Alzheimer’s Greg O’Brien, Psychology Today articles Columbia Kindred Daniel Alejandro Drubach, MD, FAAN, Twilight and Me: A Soliloquy (Lewy Body disease article mentioned at end) Connect with Dr. Gibbs Website *** About the Podcast AlzAuthors is the global community of authors writing about Alzheimer's and dementia from personal experience to light the way for others. Our podcast introduces you to our authors who share their stories and insights to provide knowledge, comfort, and support. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends on their own dementia journeys. We are a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please visit https://alzauthors.com/donate/ . Thank you for listening. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network.   Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store    
45 minutes | Aug 9, 2022
Patti Callahan Henry Untangles What it Means to Remember
What are memories? Do our memories make us who we are? What happens to “us” when our memory fails, and cognitive decline ensues? I discussed these profound questions with one of my favorite authors, Patti Callahan Henry. She is a New York Times and USA Today bestselling author of sixteen novels, a podcast host, and a co-creator and host of the popular show, Friends & Fiction. Prior to becoming an author, she was a Pediatric Clinical Nurse Specialist with a fascination for memory and focused on neurology and brain trauma. Her novel, The Favorite Daughter, joined our collection of carefully vetted books in November 2019.  “Memory,” she says, “haunts all my work but takes center stage in this one. Who do we become without those memories?”  Patti is the recipient of The Christy Award 2019 Winner “Book of the Year”; The Harper Lee Distinguished Writer of the Year for 2020, and the Alabama Library Association Book of the Year for 2019. She is also a contributor to the monthly life lesson essay column for Parade Magazine. A full-time author and mother of three, she now resides in both Mountain Brook, Alabama, and Bluffton, South Carolina with her husband. In this podcast, we explore how our memories define us, if they do, the landscape of memory, and the concept of “ambiguous loss.” After the Podcast Read Patti’s AlzAuthors post: Memory is at the Heart of Patti Callahan Henry’s The Favorite Daughter ​Purchase The Favorite Daughter on Amazon. https://amzn.to/2D9TDnQ Note: We are an Amazon Associate and may receive a small commission from book sales.  Connect with Patti Website Facebook Instagram Twitter Watch Friends & Fiction on Wednesdays at 7 pm, EST *** About the Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store
61 minutes | Jul 13, 2022
HFC Summer Series with AlzAuthors and Ruth Stevens, Author of Stage Seven, a Novel
Welcome to the first in our 2022 Summer Series with HFC. We kicked off this season on June 14th with Ruth Stevens’ novel, Stage Seven. Christy Byrne Yates moderated. About Ruth Stevens Ruth Stevens believes in stories that make you laugh and cry. She says, “I like to write about the topics that worry me the most. Since I worry about a great many things, there is never a shortage of material. A resident of Torrance, California, Ruth is a former public relations professional (in New York and Los Angeles) and proud member of the Dramatists Guild of America and Women’s Fiction Writers Association. Ruth has been writing professionally for her entire career—including hundreds of articles for magazines, newspapers, and journals—but creative writing is her passion. She took up this endeavor full-time after quitting her day job in 2017. At last count, she’s written two plays and three novels. In her spare time, she enjoys travel, hiking, wine tasting, hip hop, Broadway musicals, movies, leading a book club, and visiting her grandsons in Manhattan. Stage Seven is her first novel. About Christy Byrne Yates Christy is the mother of two – now adult – children. She is an expert in navigating the challenges and opportunities in life including living in the “Sandwich Generation” (those raising children who are also caring for an aging parent), special needs education, and parenting. She incorporates meditation, mindfulness practices and Emotional Freedom Techniques (EFT) into her work along with other evidence-based practices to support growth, goal achievement and a pathway to living your best life now. In California she is a Licensed Educational Psychologist (LEP), an author, speaker, and coach. She is the author of Building a Legacy of Love: Thriving in the Sandwich Generation available on Amazon. After the Podcast Read Ruth’s AlzAuthors post: Ruth Stevens Pens Dementia Tale as a Play and a Novel: Stage Seven Purchase Stage Seven on Amazon Note: We are an Amazon Associate and may receive a small commission from books sales. Book Mentions The Forgetting, David Shenk, available on Amazon Connect with Ruth Website Facebook Instagram *** About the Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. We are a WCN Featured Podcast Proud to be on The Health Podcast Network Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store
67 minutes | Jun 30, 2022
Four Authors Untangle When Dad Has Dementia
Caring for a father with a dementia diagnosis brings to caregiving its own special set of circumstances and considerations. In this AlzAuthors Live! Virtual Q&A we explore these changes and challenges with four of our authors. Their stories will inspire and empower you on your own dementia journey with your dad. This free virtual event was held on Tuesday, June 7th, 2022. The video replay is available on our YouTube Channel. Meet the Panelists Andrea Couture: author of Embracing What Remains, a memoir Andrea recently lost her beloved father, a renowned surgeon, to Alzheimer’s. She wrote about her family’s caregiving journey and is the first of our authors to write about caregiving during COVID. Irene Olson: author of Requiem for the Status Quo, a novel Irene survived being an Alzheimer’s family caregiver twice: to her father and her sister-in law. Her goal in writing Requiem was to encourage and educate others who might be called upon to take on the role of family caregiver. Patti Davis: author of The Long Goodbye and Floating in the Deep End: How Caregivers Can See Beyond Alzheimer’s, memoirs and caregiving guide Patti is the daughter of President Ronald Reagan, who opened the world’s eyes to the disease when he disclosed his own diagnosis in his Letter to America in 1994. Tanya Ward Goodman, author of Leaving Tinkertown, a memoir Tanya grew up in the mountains of New Mexico in a roadside attraction built by her father. Throughout his Alzheimer’s journey she documented their experience with photographs and journaling. After the Podcast Other books mentioned: Tami Anastasia, Essential Strategies for the Dementia Caregiver Dave Meurer, New Every Day Joy Johnston, The Reluctant Caregiver Note: We are an Amazon Associate and may receive a small commission from books sales. *** About the Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store    
54 minutes | Jun 27, 2022
Martin Schreiber Untangles His Two Elaines: Caring for a Wife with Alzheimer's
“If there’s one thing worse than Alzheimer’s, it’s ignorance of the disease,” says Martin Schreiber, author of My Two Elaines: Learning, Coping, and Surviving as an Alzheimer’s Caregiver, where he tells the story of his caregiving journey with his wife, who recently succumbed to her illness. Written with Milwaukee author Cathy Breitenbucher, the book was recognized by Caring.com as one of its Best Caregiving Books of 2017. Initially self-published, it was recently published by Harper Horizon. Martin is the former governor of Wisconsin and an award-winning crusader for Alzheimer’s caregivers and persons with dementia. His work on behalf of older citizens dates back decades to his 16 years in public service as a state senator, lieutenant governor and governor where he focused on improved quality for nursing home care and development of the in-home Community Care Organization. He went on to become a successful insurance executive and publisher before he started his own government relations firm in 1988. Prior to writing My Two Elaines – and while he still cared for his wife at home – Martin helped the Alzheimer’s Association launch Operation: Stronger Together. The multi-year awareness program initiated in 2015 has helped the Southeastern Wisconsin Chapter connect record numbers of families to education and resources that are vital to successful caregiving. He also collaborated with Wisconsin’s state government and business groups to help create the Dementia-Friendly Employers Toolkit, which is used by human resources departments and employee assistance programs. Such initiatives have led to Schreiber being recognized with awards from the Alzheimer’s Association and other organizations. Martin attended Valparaiso University and the University of Wisconsin–Milwaukee, and earned a doctorate of law from Marquette University. He and Elaine are the parents of four children, Kathryn Lyon, Martin Schreiber, Kristine Haas, and Matt Schreiber. They have 13 grandchildren and five great-grandchildren. In this episode, we discuss the all-around ignorance surrounding dementia, Marty’s special message to men caring for their wives, the value of therapeutic fibbing and redirection, and the realities of moving a spouse into assisted living. *** After the Podcast Connect with Martin Schreiber Website Facebook YouTube Read Martin’s AlzAuthors post: Purchase My Two Elaines on Amazon. Note: We are an Amazon Associate and may receive a small commission from books sales. *** About the Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store
50 minutes | Jun 20, 2022
AlzAuthors Untangles Custom Caregiver Collections
Join the AlzAuthors team as we discuss the launch of our latest initiative, Custom Caregiver Collections. Managers Jean Lee, a co-founder, Ann Campanella, and Susan Landeis, and author Paulette Sharkey join host Marianne Sciucco to discuss the beautifully crafted table top wooden bookshelves holding a collection of approximately 15 to 18 books about Alzheimer’s and dementia, to support our goal of providing real books to real people in real places. With more than 300 quality, carefully vetted books written from personal dementia experience in the AlzAuthors Bookstore, we are perfectly positioned to offer customized collections of memoirs, novels, caregiving guides, children’s books and more.  Custom Caregiver Collections are suited for Senior Care Communities, doctors’ offices, in-home care organizations, senior centers, memory cafes and professional or personal libraries. When placed together, these books take on a vibrant life of their own. Each book, each journey, represents years, if not decades, of shared vulnerability, revealed as a beautiful garden of healing for others. Our gratitude goes out to our generous donor, Paulette Sharkey, who covered the costs of creating our first ten Custom Caregiver Collections. These collections serve as the prototype available to communities across the country. We are so thankful! The first Custom Caregiver Collections have been presented to: ·      Four locations in Ohio ·      Two locations in North Carolina ·      Michigan ·      Minnesota ·      Alabama ·      Washington State ·      California  For more information visit https://alzauthors.com/ccc/ Meet the guests Ann Campanella, author of Motherhood: Lost and Found Jean Lee, author of Alzheimer’s Daughter Susan Landeis, author of In Search of Rainbows and Optimal Caregiving Paulette Sharkey, author of A Doll for Grandma Marianne Sciucco, author of Blue Hydrangeas, an Alzheimer's love story *** About the Podcast Each season our podcast brings you six of our authors sharing their dementia journeys. Please subscribe so you don’t miss a word. If our authors’ stories move you, please leave a review. And don’t forget to share our podcast with family and friends in need of knowledge, comfort, and support on their own dementia journeys. AlzAuthors is a 501(c)(3) charitable organization totally reliant on donations to do what we do. Your generosity will help cover our many operating costs, which include website hosting and maintenance fees, service charges to keep things running smoothly, and marketing expenses to promote our authors, expand our content, improve our reach, and more. Our ongoing work supports our mission to lift the silence and stigma of Alzheimer’s and other dementias. To sustain our efforts please donate here. We are a WCN Featured Podcast. Proud to be on The Health Podcast Network. Want to be on the podcast? Here’s what you need to know. Thanks for listening. AlzAuthors.com Shop our Store
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