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A group of high school students are spreading awareness about Parkinson's Disease for their HOSA project, which is a worldwide club for future health professionals. Their idea came from one of the group member's uncle who has suffered from the disease for the last 16 years. The students have been working on various activities to raise awareness, such as selling donuts and making bracelets, and will be presenting their project at the spring leadership conference on March 10th. The students have also created a website to further spread awareness and encourage others to share their stories and suggestions. Website: https://learn-fundraise-and-tell-your-parkinsons-disease-story.square.site/about-us   Special thanks to Sadie Robitaille, Brady Benedict-Smith, Sydney Pagnozzi and Ava Pilderian

WE ARE CLOSING OUT 2 MIKES, PLEASE FOLLOW US AT YOPNs LIVING WELL STARTS HERE PODCAST https://yopn.podbean.com/

Join the Young Onset Parkinson's Network (YOPNetwork.org) in celebrating Dianne Goebel Bramble's inspiring story! Dianne's small business, Mind and Body Wellness for You, offers coaching and personal training (mindandbodywellnessforyou.com) . She also sells her beautiful Parkinson's-inspired paintings on Facebook and has authored two books. Check out past podcast episodes on yopn.podbean.com and join the YOPN community for free at yopnetwork.org. #YOPN #ParkinsonsAwareness #InspiringJourney

n 2008, Miriam was diagnosed with Young Onset Parkinson’s Disease (YOPD) at the age of 44. She is a Parkinson’s advocate and Ambassador for the 6th World Parkinson Congress (WPC) which will take place in Barcelona July 4-7 2023.   As an advocate, she has  raised awareness of Parkinson’s disease and  fundraises to help speed research for a cure. Check out her blog at https://www.shakingupparkinsons.com/ “Living well with Parkinson’s requires a commitment to staying positive and noticing what you can do rather than what you can no longer do. It is possible to have Parkinson’s and live a happy and fulfilling life.” - Miriam Bram, Parkinson’s Advocate and Ambassador, World Parkinson Congress To listen to past episodes go to https://yopn.podbean.com/ Interested in joining the YOPN community? Go to https://yopnetwork.org/

Tati Mayorga Wolfe was diagnosed with Young Onset Parkinson's Disease (YOPD) at 31. Now 35 She has fought back from deep depression, and discovered ayurvedic holistic medicine   Ayurveda. While the word may be unknown to many, this holistic approach to medicine has been around for over 5,000 years. Ayurveda is the “traditional, ancient Indian system of health science” and known to be one of the oldest medical systems in the world. Through ayurvedic holistic medicine, yoga, meditation and a few other bits of information, Tati has found peace, acceptance, and a better way of life and refuses to give into PD. Check out her TikTok at https://www.tiktok.com/@tati.wolfe This is not intended for a cure, please consult with your Doctor for all health related issues To listen to past podcast episodes go to https://yopn.podbean.com/ Interested in joining the YOPN community? Go to https://yopnetwork.org/

"Calling all music lovers! Tune in to the young onset Parkinson's podcast interview episode of 'Call on the Fighter' Part 2 where we sit down with the one and only Richard Gootee. He'll be sharing his incredible story, the inspiration behind his Grammy-winning song "Just Reach Out" for the 80s Christian Rock band Petra. Plus, we'll be getting the inside scoop on "Call on the Fighter" and his new release, The Caregiver (I Need A Love)". And who knows, we might even hear an endorsement from Peter Frampton. And don't forget to welcome our new co-hosts Nathan Lee Ward and Ned Neuhaus! #CallontheFighter #RichardGootee #JustReachOut #Petra #YoungOnsetParkinsons #TheCaregiverINeedALove #PeterFrampton #NathanLeeWard #NedNeuhaus #Music #Radioparkies #YOPN #Podcast #inspiration

When a mom with young onset Parkinson's and her son team up, amazing things happen! Checkout the heartwarming story of Joni and Sequoia Lowe and their hit song "Slim Shaky"

"Exciting news for sports fans! "One Giant Leap for Fankind," the new book by ESPN founder Bill Rasmussen, has just won the grand prize at the New England book festival. In the book, Bill shares his secrets to staying positive and offers valuable tips for maintaining a positive outlook. Don't miss this opportunity to hear from the man who revolutionized sports broadcasting and get your hands on a copy of this award-winning book. Follow Bill Rasmussen for more inspiring content“ to purchase the book go to https://www.espnfounder.com/books Special thanks to APDA Regional Director Bill Patjane

Michelle Newman, the Chief Operating Officer of the Kirk Gibson Foundation for Parkinson's, discusses her decision to leave corporate America and join the foundation. She shares her personal connection to Parkinson's disease through her father's experience with the condition, and discusses how he managed his disease. Additionally, she explains the mission and purpose of the Kirk Gibson Foundation for Parkinson's, which is dedicated to supporting individuals with Parkinson's and advancing research on the condition.

Thanks to Ellen Bookman for taking the lead on this series Special thanks to StanandTeresa Jackson for coming on the show (Part 3) and sourcing great guests for this series.   Teresa Jackson is a National Board-Certified Health & Wellness Coach (NBC-HWC), Duke Integrative Medicine Coaching Program, and a Certified Coach— International Coaching Federation who will: Discuss how to take what you have learned about mental wellness, develop a plan, and apply it to your everyday life in concert with the medical management aspect of the disease. Karen Goble, Director at Southern Regional Area Health Education, an ordained chaplain, and a certified Integrative Health Coach and Cognitively Based Compassion Training teacher through the Emory University Center for Contemplative Science and Compassion-Based Ethics will: Discuss the benefits of utilizing calming techniques such as meditation and breathing as a tool to maintaining Mental Wellness. Mental Health Series Segment 2 https://yopn.podbean.com/e/mental-health-part-2-with-ellen-bookman-and-dr-charles-dent/ Segment 1 https://yopn.podbean.com/e/maintaining-emotional-health-is-as-important-as-the-medical-management-of-any-chronic-disease-diagnosis/

Dr. Schmidt is active in research, specializing in the intersection between mathematics and medicine, with a special interest in mapping the n-dimensional spaces of clinical data. Schmidt serves as an advisor to several government, industry, and foundation initiatives. He has been involved in several national-scale quality initiatives including with the US National Quality Forum and the Fresco Network in Italy. Schmidt has recent or current advisory engagements in wearable sensors, telemedicine, remote monitoring, and clinical trial design. He has contributed to AHRQ and Commonwealth Fund publications and has been an invited speaker for NIH and diverse international patient and professional conferences. Schmidt previously worked in corporate finance-focused on healthcare innovation, created chronic disease management systems, and served as Chief Operating Officer of a joint venture of Oxford, Stanford, and Yale delivering online education. Educated at Harvard and Cornell, he had a fellowship

In this Episode we spoke with Andrea Merriam, CEO and Anissa Mitchell, LCSW, Chief Program Officer of the PMD Alliance about the ALL IN summit The ALL IN summit was held October 22-25 in Washington DC This national in-person summit gathered community + support group leaders and allies from around the country, convening prospective leaders, newbies, and veterans to connect, collaborate, and embrace the magic that happens when we come together to learn. About the PMD alliance PMD Alliance is a 501c3 nonprofit organization dedicated to educating, empowering, and connecting people with movement disorders, their families, and the healthcare providers and community members who care for them.

Welcome to Segment 2 of our mental health series Segment 1 included MENTAL HEALTH SYMPTOMS ASSOCIATED WITH A YOPD DIAGNOSIS which can be found here https://twomikespdpodcast.podbean.com/e/maintaining-emotional-health-is-as-important-as-the-medical-management-of-any-chronic-disease-diagnosis/ In segment 2 we discuss a PRIMER ON WAYS TO STAY MENTALLY HEALTHY AS YOU NAVIGATE THOSE THINGS IN LIFE THAT where we: Discuss how we process and understand feelings and emotions as we deal with situations unique to those diagnosed with YOPD Offer insight into managing and expressing feelings Dive into how we connect with others Describe how we function or “put the pieces together” to make life decisions such as family, marriage, work, retirement, etc. Our guest is Dr. Charles Dent: Dr. Charles Dent, M.Div, PHD., is a licensed Mental Health First Aid Trainer, Coach and Therapist. Dr. Dent, a Veteran of the US Marine Corps Special thanks to Ellen Bookman and Theresa Jackson

"Call on the Fighter" began as a simple idea...create and offer original music to encourage and inspire "fighters" along their Parkinson's journey. Colleen Bridges, owner, and director of Bridges for Parkinson's found the perfect fit in one of her own fighters, Rich Gootee. Rich, an award-winning singer/songwriter, knows all too well the constant and daily struggles as he was diagnosed with Parkinson's disease in 2018. Colleen's experience, research, and regular boxing classes have helped Rich and many others discover the fight within themselves to overcome the otherwise debilitating effects of Parkinson's disease. Together, Colleen, Rich, and their team have grown the music idea into an effort to help even more fighters find restoration and hope by raising funds so that nobody will ever have to be turned away from their local program. Please check out more information about our project and consider purchasing our song at www.callonthefighter.com. Thank you for watching!  https://www.youtube.com/watch?v=rq6onvFOC9Y Song Written and performed by Greg Anderson and Rich Gootee

The woman who can smell Parkinson’s Joy Milne’s husband Les was diagnosed with Parkinson’s at the age of 45. However, it had been 12 years earlier when Joy had first noticed that something was different about him. Joy has a rare condition called hereditary hypersomnia that gives her a heightened sense of smell. When Les was 33, she noticed that he had started to develop an odor, which she described as a subtle, musky smell. She also noticed the same distinct smell when attending meetings organised by the charity Parkinson’s UK. It was at this point that she was able to link the smell to the disease.  Joy’s ‘super smeller’ abilities would soon go on to make headlines around the world, and along with researchers, they're changing the landscape of diagnosing Parkinson's.

Sheila Thelen, owner of Vestibular Training Services LLC (VTS), is a National/International/Master Figure Skating Coach & Worldwide presenters at International Conferences & Events. (She is a Vestibular GENIUS - working with thousands of athletes & kids & rehabilitation groups throughout the world.) https://vestibulartrainingservices.com/web/index.php?siteid=420&pageid=3356 She's here to talk about the benefits that Vestibular training has for people with Parkinson's

The American Parkinson Disease Association (APDA) Massachusetts Chapter is thrilled to announce it will host the region’s first ever APDA MA Magic of Hope Gala next month. The event will take place on Friday, November 4, from 6:30 to 10:30pm, at the Newbury Boston.  Event chair Allison Goldberg (Saker) and committee welcome all to this evening of dinner and dancing to support the APDA, which provides local, grassroots resources to people impacted by Parkinson’s in Massachusetts. More than 200 guests from the Greater Boston area will attend, many of whom have been touched personally by Parkinson’s.  Guests will enjoy a cocktail hour and silent auction followed by dinner, dancing and a live auction. The glamorous backdrop for these festivities will be the iconic and newly restored Newbury Boston in Back Bay (www.thenewburyboston.com/).  Tune in as we speak with Bill Patjane Northeast Regional director of the APDA Allison Goldberg (Gala Lead) Caroline Baltz (Friend and Business partner of Allison) https://www.apdaparkinson.org/community/massachusetts/upcoming-events-ma/moh/

Today's guests include Eli Pollard and Alison Miller Elizabeth “Eli” Pollard is the Executive Director of the World Parkinson Coalition (https://www.worldpdcoalition.org/) talks about many subjects including the WPC in 2023 being held in Spain. She also discusses the "Parkinson's Tulip Project" what it's about and how to enter. Travel grants and much more! Alison Miller, Strategic Partnership Manager with Supernus Pharmaceutical (https://www.supernus.com/commercial-products), talks about building relationships within the Parkinson's Community and the drugs offered by Surpernus to help "on time" as well as the "Parkinson's Tulip Project"

Thanks to Ellen Bookman for taking the lead on this series Special thanks to StanandTeresa Jackson for coming on the show (Part 2) and sourcing great guests for this series.   Maintaining emotional health is as important as the medical management of any chronic disease diagnosis   Monday at 8AM EST on radioparkies.com, we begin a 3-part Mental Wellness series created to educate those diagnosed with YOPD on the importance of maintaining mental wellness Many diagnosed with YOPD may experience a flood of emotions, particularly when the diagnosis comes in the prime of life - as it does with YOPD. The 3-part Mental Wellness, Sponsored by the Young Onset Parkinson's Network (YOPNetwork.org), will:  Identify non-motor symptoms such as depression, anxiety, lack of sleep, apathy, etc.  Discuss how non-motor symptoms can affect everyday life such as how to deal with family, work, retirement, telling people, etc.  Offer tips on how to develop a mental wellness health plan  Examine how mediation can be a component in maintaining mental wellness. SEGMENT ONE: MENTAL HEALTH SYMPTOMS ASSOCIATED WITH A YOPD DIAGNOSIS Bo Majors, Licensed Social Worker, employed by Texas Children’s Pediatrics in Austin, Texas, who will  Identify mental health symptoms associated with a YOPD diagnosis.  Discuss the consequences of physicians focusing only on the diagnosis, clinical assessment, evaluation, and medical management of our symptoms

This week on radioparkies.com sponsored by the Young Onset Parkinson's Network (YOPNetwork.org) we chat with  John Cullen about his documentary. The documentary, “It’s Just Parkinson’s” is an inspiring and emotional look at one man’s journey to live life to the fullest, while living with a disease that has no cure. John Cullen is a 62-year-old man battling Parkinson’s disease with grit, courage, grace, and a warrior mindset. A lifelong athlete, Parkinson’s has slowly taken Cullen out of many athletic pursuits. Yet after being introduced to powerlifting, and incorporating it into his workouts, the improvement to his mobility has been staggering. In a dramatic finish, Cullen competes in his first ever powerlifting contest. IJP is about life, death, brotherhood and the profound impact of mindset in the face of adversity. You can see the documetary here: https://vimeo.com/706326801 Password: Password: Lemond19898xii