About This Show
PSC Mami: Stories at the intersection of PSC and parenthood.
You are diagnosed with a rare, incurable disease. You are young, you are female. You had a vision for your future. You wanted kids. But can you? Women who have been there talk about how a diagnosis of Primary Sclerosing Cholangitis, a rare autoimmune disease, reshaped their vision of their lives and parenthood.
Most Recent Episode
Emily has her son post diagnosis and survives UC, PSC, cancer and transplant with optimism
Emily has been battling serious illnesses, PSC, UC since she was 19, and liver cancer at 33. As a mother, she has done her best to create an optimistic life with as little fear for her young son as possible as she has survived a colectomy, cancer treatment and a liver transplant. She discusses what it was like to be in survival mode for most of her adult life, what it meant to be a “sick mom” and how her outlook since transplant is all about her zest for life and what might come next. Bonus resource mentioned by PSC Mami at end of episode: Selfless Snowman | Doc McStuffins
Episodes of This Show
Dec 21, 2017