The Colon Cancer Podcast
About This Show
A one-on-one interview with survivors, care-givers and others affected by the all-too-common, but not as “famous” cancer. Join us as a new guest shares their story and shines some light on the darkness of colorectal cancer.
Most Recent Episode
Living Life With F.A.P., With Jenny Jones of “Life’s A Polyp”
LEE: Good evening, Jenny. How are you? Thanks for joining me this evening.
JENNY: Thanks for having me. I’m doing pretty good.
LEE: Good. So we were just chatting before we went live and I’m trying to think: how did I first find out about Jenny? And I thought about it and it was absolutely through your blog, which we definitely want to talk about Life’s A Polyp. I love the title and I’d love to hear where you came up with that. More importantly, about you first and foremost, how’s your health right now?
JENNY: It’s doing pretty good. I have a lot of chronic nausea and pain as my biggest problems for the last year. But it’s manageable, so it’s pretty stable.
LEE: Okay. And like many folks who have had experience hereditary cancer syndrome, you were diagnosed very early with F.A.P.
JENNY: Yes, it was about when I was eight that I got diagnosed.
LEE: And was there a family history?
JENNY: Yes, my mom has it, my grandpa did, and then several of his extended family did. But I just knew of my mom and my grandfather when I was growing up.
LEE: How was that explained to you as a young child?
JENNY: You know it was kind of just something that I grew up with. My mom and my grandpa both had ostomies so it was just a part of life. I was never told that’s what might happen for me. Of course we didn’t really know that it would happen to me until I was eight or nine anyway. It was just a part of life.
LEE: And when did you wind up having the surgery?
JENNY: When I was nine. It was a year later.
LEE: Take us from how life kind of transpired growing up with an ostomy. As you got older, to be a teenager and stuff like that, was is still normal or did you run into some challenges?
JENNY: I didn’t accept it well at all. I was very angry, very bitter about it from day one. I didn’t accept it until I had the reversal done six years later. And even then it was several years after that that I had actually accepted that I had an ostomy and what life was like with one.
LEE: So then fast forward and what was the impetus for you to start writing?
JENNY: I had joined one of the Facebook F.A.P. groups and one of the administrators was asking for people who would be invol