Byrds Fore A Cure-Cast
About This Show
Byrds Fore A Cure-Cast is dedicated to sharing the latest on SMA research as well as other topics of interest to our muscular dystrophy family and the special needs community. I am a parent of three children, two of whom have type 2 spinal muscular atrophy.
Most Recent Episode
Ep 9: Happy Rare Disease Day! And the State of SMA Research Now vs 2010
Happy Rare Disease Day! (Though, how happy are we to be celebrating rare disease...?) Social media today is buzzing with #rarediseaseday, so check out the hashtag and be inspired by the tweets, blog posts, and moral support of our rare disease community. Also in this episode, I found a "SMA research update" I wrote in 2010 and find it interesting to make comparisons of the state of SMA research and the momentum our SMA community has now versus then. Also, I've been super interested in stem cell research for a long time, so there's some chatter about that, too. Links mentioned in this episode: Rare Disease Day Byrds Fore A Cure Sign up to play in Byrds Fore A Cure here. Follow Byrds For A Cure on: Facebook Twitter LinkedInInstagram