Byrds Fore A Cure-Cast
About This Show
Byrds Fore A Cure-Cast is dedicated to sharing the latest on SMA research as well as other topics of interest to our muscular dystrophy family and the special needs community. I am a parent of three children, two of whom have type 2 spinal muscular atrophy.
Most Recent Episode
Ep 7: FDA Approval of Spinraza, Part 1!
Dec 31 16
The U.S. FDA approved nusinersen (now known as Spinraza) on December 23rd, 2016. The following week Biogen announced the cost of this first-ever therapy for SMA, and the SMA community went on to lose it's mind. I spend some time addressing this, plus a December update on the kiddos. Links mentioned in this episode: Kure for Kulas Ren Will Walk Arms for Asher Global Genes RAREcast - November 9, 2016 episode Follow Byrds For A Cure on: Facebook Twitter LinkedIn