Byrds Fore A Cure-Cast
About This Show
Byrds Fore A Cure-Cast is dedicated to sharing the latest on SMA research as well as other topics of interest to our muscular dystrophy family and the special needs community. I am a parent of three children, two of whom have type 2 spinal muscular atrophy.
Most Recent Episode
Ep 8 - FDA Approval of Spinraza, Part 2!
The SMA community has had a full month to process the magnitude of FDA approval of the first treatment for SMA, Spinraza, and to learn more about the process of getting insurance approval and where to go locally to get it. The shininess of Spinraza is wearing off for me, a little, as far as it's potential to help non-newly diagnosed people with SMA. Time will tell, and the data from the next couple years will hopefully prove that I don't know what I'm talking about. Links mentioned in this podcast: Rare Disease Day 2/28International Day of Acceptance 1/203E Wheelchair Love merch store Spinraza.com Anthem Caps Coverage Of Biogen Spine Drug Despite Wide FDA Approval Like us on Facebook. Follow us on Twitter, Instagram, and LinkedIn!